Archive of MEA Surveys

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    At what age did your ME/CFS symptoms first occur?

    • 20-29 (23%, 634 Votes)
    • 30-39 (23%, 627 Votes)
    • 40-49 (19%, 507 Votes)
    • 13-19 (16%, 447 Votes)
    • 50-59 (8%, 206 Votes)
    • Under 12 (6%, 166 Votes)
    • 60-69 (2%, 57 Votes)
    • No clear onset (1%, 38 Votes)
    • 70+ (1%, 18 Votes)
    • Cannot remember (1%, 11 Votes)
    • Total Voters: 2,711

Start Date: July 1, 2009 @ 2:37 pm
End Date: November 2, 2009 @ 2:37 pm

    What effect does hot weather have on your ME/CFS?

    • Feel much worse (40%, 488 Votes)
    • Feel a bit worse (20%, 246 Votes)
    • Feel a bit better (19%, 236 Votes)
    • No change (11%, 128 Votes)
    • Feel much better (10%, 121 Votes)
    • Total Voters: 1,219

Start Date: June 1, 2009 @ 2:34 pm
End Date: August 30, 2009 @ 2:34 pm

    In the past year, how much have you spent on treatments for ME/CFS not available on the NHS?

    • £100 - £500 (26%, 157 Votes)
    • Nothing (22%, 136 Votes)
    • £1,000 - £5,000 (19%, 115 Votes)
    • £500 - £1,000 (15%, 94 Votes)
    • Less than £100 (12%, 71 Votes)
    • £5,000 - £10,000 (4%, 23 Votes)
    • More than £10,000 (2%, 15 Votes)
    • Total Voters: 611

Start Date: May 1, 2009 @ 2:30 pm
End Date: November 2, 2009 @ 2:30 pm

    What was the MAIN trigger factor in the onset of your ME/CFS?

    • Infection (43%, 813 Votes)
    • Stress (18%, 335 Votes)
    • No obvious trigger (14%, 266 Votes)
    • Trauma or accident (5%, 99 Votes)
    • Immunisation (5%, 95 Votes)
    • Infection from overseas travel (4%, 67 Votes)
    • Surgery (3%, 64 Votes)
    • None of the above (3%, 50 Votes)
    • Pregnancy (2%, 41 Votes)
    • Drug reaction (1%, 24 Votes)
    • Pesticide (1%, 18 Votes)
    • Allergic reaction (1%, 13 Votes)
    • Total Voters: 1,885

Start Date: April 1, 2009 @ 2:25 pm
End Date: November 2, 2009 @ 2:25 pm

    Does your current GP have the skills and knowledge to care for ME/CFS patients?

    • NO sympathetic but needs more education (41%, 443 Votes)
    • NO not interested in ME/CFS (23%, 252 Votes)
    • YES to some extent (16%, 176 Votes)
    • NO knows nothing about ME/CFS (14%, 151 Votes)
    • Yes very much so (6%, 69 Votes)
    • Total Voters: 1,091

Start Date: March 1, 2009 @ 2:22 pm
End Date: November 2, 2009 @ 2:22 pm

    Overall, how do you rate the current NHS management of your ME/CFS?

    • Very poor (51%, 564 Votes)
    • Poor (20%, 226 Votes)
    • I no longer use the NHS (16%, 172 Votes)
    • Average (7%, 75 Votes)
    • Good (4%, 41 Votes)
    • Excellent (2%, 28 Votes)
    • Total Voters: 1,106

Start Date: January 31, 2009 @ 2:18 pm
End Date: November 2, 2009 @ 2:18 pm

    Would you be willing to donate your body after death to medical research into ME/CFS?

    • Yes (73%, 334 Votes)
    • Not sure (14%, 64 Votes)
    • No (13%, 62 Votes)
    • Total Voters: 460

Start Date: January 5, 2009 @ 2:12 pm
End Date: November 2, 2009 @ 2:12 pm

    The MEA thinks the NICE guideline on ME/CFS is unfit for purpose and needs to be re-written

    • I agree (91%, 774 Votes)
    • I disagree (6%, 54 Votes)
    • I've got no opinion either way (3%, 21 Votes)
    • Total Voters: 849

Start Date: December 1, 2008 @ 2:09 pm
End Date: November 2, 2009 @ 2:09 pm

    How did your flu jab affect your ME/CFS symptoms?

    • I felt the same (45%, 86 Votes)
    • I felt much worse (27%, 52 Votes)
    • I felt slightly worse (22%, 42 Votes)
    • I felt slightly better (4%, 7 Votes)
    • I felt much better (2%, 4 Votes)
    • Total Voters: 191

Start Date: November 13, 2008 @ 2:06 pm
End Date: September 10, 2009 @ 2:06 pm