Archive of MEA Surveys

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    Have you used melatonin to help with a sleep problem in ME/CFS? If so, was it helpful?

    • Very helpful (16%, 86 Votes)
    • Of some help (14%, 74 Votes)
    • No effect (11%, 59 Votes)
    • Made worse (3%, 15 Votes)
    • Made much worse (2%, 10 Votes)
    • Not used melatonin (54%, 297 Votes)
    • Total Voters: 541

Start Date: October 2, 2017 @ 4:09 pm
End Date: No Expiry

    What has happened to your weight since you developed ME/CFS?

    • Large increase (37%, 266 Votes)
    • Moderate increase (23%, 164 Votes)
    • Small increase (7%, 53 Votes)
    • No change (8%, 57 Votes)
    • Fluctuates (11%, 77 Votes)
    • Small decrease (3%, 23 Votes)
    • Moderate decrease (6%, 40 Votes)
    • Large decrease (5%, 39 Votes)
    • Total Voters: 719

Start Date: September 1, 2017 @ 1:08 pm
End Date: No Expiry

    If you have severe ME, which of the following services and DWP benefits have you (or your carer) received?

    • GP Home Visits (11%, 64 Votes)
    • Hospital Home Visits (1%, 8 Votes)
    • Hospital Out Patient Management (7%, 45 Votes)
    • Hospital In Patient Management (1%, 7 Votes)
    • NHS Care Plan (1%, 8 Votes)
    • Social Care (8%, 48 Votes)
    • Personal Independence Payment (PIP) or (DLA) (25%, 152 Votes)
    • Carers Allowance (6%, 35 Votes)
    • Disabled Facilities Grant (3%, 19 Votes)
    • Blue Badge (22%, 134 Votes)
    • None of the above (14%, 84 Votes)
    • Total Voters: 285

Start Date: August 10, 2017 @ 11:53 am
End Date: No Expiry

    Do you think the NICE guideline for CFS/ME is working for you?

    • Yes - I think it is (1%, 4 Votes)
    • Yes - but it could be better (0%, 3 Votes)
    • No - I think it needs a minor review (1%, 8 Votes)
    • No - I think it needs a major review (94%, 727 Votes)
    • I am not sure (1%, 7 Votes)
    • What's the NICE guideline? (3%, 24 Votes)
    • Total Voters: 773

Start Date: July 10, 2017 @ 6:38 pm
End Date: No Expiry

    Overall, how do you rate the June 27th BBC 'file on 4' radio programme that covered children with ME?

    • Excellent (9%, 11 Votes)
    • Very Good (19%, 24 Votes)
    • Good (28%, 36 Votes)
    • Average (10%, 13 Votes)
    • Poor (6%, 8 Votes)
    • Very Poor (2%, 3 Votes)
    • No Opinion (0%, 0 Votes)
    • I did not listen to it (26%, 33 Votes)
    • Total Voters: 128

Start Date: July 1, 2017 @ 2:05 pm
End Date: August 1, 2017 @ 2:05 pm

    Should doctors be allowed to prescribe speculative or experimental forms of treatment - e.g. antiviral drugs - for people with ME/CFS?

    • Yes - definitely (43%, 215 Votes)
    • Yes - in some circumstances (40%, 202 Votes)
    • Not sure (8%, 38 Votes)
    • No opinion (1%, 3 Votes)
    • Probably not (4%, 19 Votes)
    • Definitely not (4%, 22 Votes)
    • Total Voters: 499

Start Date: June 1, 2017 @ 10:00 am
End Date: No Expiry

    How much do you currently spend on vitamins, minerals and health supplements per month?

    • Nothing (25%, 96 Votes)
    • Up to £5 (15%, 57 Votes)
    • £6 to £10 (12%, 45 Votes)
    • £11 – £25 (16%, 59 Votes)
    • £26 – £50 (14%, 52 Votes)
    • £51 – £100 (10%, 38 Votes)
    • £101 – £250 (4%, 17 Votes)
    • Over £250 (2%, 8 Votes)
    • Don't know (2%, 6 Votes)
    • Total Voters: 378

Start Date: May 3, 2017 @ 1:22 am
End Date: No Expiry

    What was the result of your most recent blood test, or before treatment was given, to assess thyroid gland function?

    • low - hypothyroidism (19%, 66 Votes)
    • borderline low (14%, 48 Votes)
    • normal (44%, 150 Votes)
    • borderline raised (2%, 8 Votes)
    • raised - hyperthyroidism (2%, 6 Votes)
    • don't know (10%, 33 Votes)
    • never done (9%, 31 Votes)
    • awaiting results (0%, 1 Votes)
    • Total Voters: 343

Start Date: April 1, 2017 @ 8:00 am
End Date: No Expiry

    How often do you have sensory symptoms in the skin such as 'pins and needles', loss of sensation, or pain on touching the skin?

    • Constantly (20%, 109 Votes)
    • Frequently (41%, 229 Votes)
    • Quite often (19%, 104 Votes)
    • Occasionally (15%, 85 Votes)
    • Never (5%, 30 Votes)
    • Total Voters: 557

Start Date: March 1, 2017 @ 5:00 pm
End Date: No Expiry

    Where is your normal place of residence?

    • England (76%, 476 Votes)
    • Scotland (10%, 63 Votes)
    • Wales (3%, 22 Votes)
    • Northern Ireland (2%, 13 Votes)
    • Europe outside the UK (3%, 18 Votes)
    • North America or Canada (3%, 19 Votes)
    • Asia or Africa (0%, 2 Votes)
    • Australia or New Zealand (2%, 10 Votes)
    • Other (1%, 6 Votes)
    • Total Voters: 629

Start Date: February 2, 2017 @ 1:18 pm
End Date: No Expiry