Archive of MEA Surveys

Home > Archive of MEA Surveys

    Have you told us what you think of the MEA? Our survey and this poll are now CLOSED

    • YES - because I appreciate being asked (83%, 44 Votes)
    • YES - but only because I'm a member (2%, 1 Votes)
    • YES - but only because I'm a non-member (2%, 1 Votes)
    • NO – I'm not well enough to complete a survey (8%, 4 Votes)
    • NO - I dislike surveys on principle (0%, 0 Votes)
    • NO - Oh please! I have better things to do with my time! (5%, 3 Votes)
    • Total Voters: 53

Start Date: June 3, 2015 @ 8:06 am
End Date: No Expiry

    Will you be contacting your new MP after the election to ask him/her to join the All Party Parliamentary Group on ME at Westminster?

    • Definitely (31%, 45 Votes)
    • Probably (13%, 19 Votes)
    • Not sure (18%, 26 Votes)
    • Probably not (27%, 38 Votes)
    • Definitely not (11%, 15 Votes)
    • Total Voters: 143

Start Date: May 1, 2015 @ 10:10 am
End Date: No Expiry

    How helpful has your union/professional body been when you have asked for help with an employment problem?

    • Very helpful (0%, 0 Votes)
    • Quite helpful (0%, 0 Votes)
    • Not interested (0%, 0 Votes)
    • Neutral (0%, 0 Votes)
    • Unhelpful (0%, 0 Votes)
    • Very unhelpful (0%, 0 Votes)
    • Never asked for help (100%, 0 Votes)
    • Total Voters: 0

Start Date: April 1, 2015 @ 8:36 pm
End Date: May 1, 2015 @ 10:12 am

    If you are still able to work, how helpful is your employer re: modifications to hours, duties, etc?

    • Very helpful (9%, 21 Votes)
    • Quite helpful (5%, 12 Votes)
    • Varies: helpful and unhelpful (7%, 16 Votes)
    • Neutral (3%, 7 Votes)
    • Unhelpful (2%, 6 Votes)
    • Very unhelpful (7%, 16 Votes)
    • Unable to work (58%, 139 Votes)
    • I'm self-employed (9%, 24 Votes)
    • Total Voters: 241

Start Date: April 1, 2015 @ 8:40 pm
End Date: May 1, 2015 @ 10:12 am

    Should CFS and/or ME be renamed Systemic Exertion Intolerance Disease (SEID) as recommended in the U.S. Institute of Medicine Report?

    • Yes - but for CFS only (9%, 67 Votes)
    • Yes - but for ME only (3%, 26 Votes)
    • Yes - for CFS and ME (14%, 108 Votes)
    • Not sure (9%, 69 Votes)
    • No opinion (1%, 11 Votes)
    • No - do not like SEID (64%, 472 Votes)
    • Total Voters: 753

Start Date: March 1, 2015 @ 12:00 am
End Date: May 1, 2015 @ 10:13 am

    If you need to nap during the daytime, how do you generally feel afterwards?

    • Better cognitively, Unchanged physically (15%, 105 Votes)
    • Better physically, Unchanged cognitively (7%, 46 Votes)
    • Better - both cognitively and physically (29%, 198 Votes)
    • No change (13%, 90 Votes)
    • Worse - both cognitively and physically (15%, 107 Votes)
    • Worse cognitively, Better physically (5%, 32 Votes)
    • Worse physically, Better cognitively (3%, 18 Votes)
    • I don't nap in the daytime (13%, 95 Votes)
    • Total Voters: 691

Start Date: February 3, 2015 @ 9:00 am
End Date: No Expiry

    To what extent do you suffer from cold hands and/or feet during the winter months?

    • All of the time (31%, 253 Votes)
    • Most of the time (50%, 413 Votes)
    • Only in cold weather (6%, 48 Votes)
    • Occasionally (10%, 79 Votes)
    • Never (3%, 25 Votes)
    • Total Voters: 818

Start Date: January 1, 2015 @ 8:15 am
End Date: No Expiry

    How would you prefer your illness to be described?

    • M.E. (70%, 620 Votes)
    • ME/CFS (13%, 115 Votes)
    • CFS/ME (4%, 34 Votes)
    • CFS (3%, 30 Votes)
    • PVFS (1%, 12 Votes)
    • CFIDS (1%, 11 Votes)
    • Other (4%, 34 Votes)
    • Not bothered (4%, 31 Votes)
    • Total Voters: 887

Start Date: December 1, 2014 @ 1:49 pm
End Date: No Expiry

    To what degree does joint pain occur in your ME/CFS?

    • severe (35%, 234 Votes)
    • moderate (35%, 237 Votes)
    • mild (10%, 67 Votes)
    • occasional (11%, 75 Votes)
    • never had joint pain (9%, 56 Votes)
    • Total Voters: 669

Start Date: November 2, 2014 @ 4:04 pm
End Date: December 1, 2014 @ 2:07 pm

    Reports from the Research Collaborative conference in Bristol suggest exciting new directions for ME/CFS research (see http://wp.me/p3Txzy-5ud). What do you think?

    • A breakthrough is on the way (5%, 8 Votes)
    • A big step forward (7%, 10 Votes)
    • There's potential for better, future research (15%, 22 Votes)
    • Looks hopeful, but it's early days (27%, 41 Votes)
    • Same old, same old... (20%, 30 Votes)
    • Too much emphasis on chronic fatigue/CFS (17%, 25 Votes)
    • No comment (9%, 14 Votes)
    • Total Voters: 150

Start Date: October 3, 2014 @ 7:54 am
End Date: December 1, 2014 @ 2:07 pm