Archive of MEA Surveys

Home > Archive of MEA Surveys

    To what degree does joint pain occur in your ME/CFS?

    • severe (35%, 234 Votes)
    • moderate (35%, 237 Votes)
    • mild (10%, 67 Votes)
    • occasional (11%, 75 Votes)
    • never had joint pain (9%, 56 Votes)
    • Total Voters: 669

Start Date: November 2, 2014 @ 4:04 pm
End Date: December 1, 2014 @ 2:07 pm

    Reports from the Research Collaborative conference in Bristol suggest exciting new directions for ME/CFS research (see http://wp.me/p3Txzy-5ud). What do you think?

    • A breakthrough is on the way (5%, 8 Votes)
    • A big step forward (7%, 10 Votes)
    • There's potential for better, future research (15%, 22 Votes)
    • Looks hopeful, but it's early days (27%, 41 Votes)
    • Same old, same old... (20%, 30 Votes)
    • Too much emphasis on chronic fatigue/CFS (17%, 25 Votes)
    • No comment (9%, 14 Votes)
    • Total Voters: 150

Start Date: October 3, 2014 @ 7:54 am
End Date: December 1, 2014 @ 2:07 pm

    What is the most effective treatment you have used for pain relief in ME/CFS?

    • acupuncture (4%, 13 Votes)
    • amitriptylene (10%, 32 Votes)
    • aspirin (1%, 4 Votes)
    • gabapentin/Neurontin (10%, 31 Votes)
    • pregabalin/Lyrica (7%, 22 Votes)
    • ibuprofen/Brufen (9%, 28 Votes)
    • paracetamol (6%, 18 Votes)
    • strong opiate (11%, 33 Votes)
    • TENS machine (1%, 4 Votes)
    • tramadol (12%, 38 Votes)
    • other (29%, 88 Votes)
    • Total Voters: 310

Start Date: September 8, 2014 @ 10:27 am
End Date: December 1, 2014 @ 2:07 pm

    Has your GP ever referred you to a specific NHS consultant or ME/CFS service of your choice - regardless of location?

    • YES – successful (34%, 121 Votes)
    • YES – not successful (13%, 44 Votes)
    • NO – refused to do so (13%, 45 Votes)
    • NO – I've never asked (39%, 136 Votes)
    • NO – I do not have a GP (1%, 6 Votes)
    • Total Voters: 352

Start Date: July 31, 2014 @ 9:00 pm
End Date: December 1, 2014 @ 2:06 pm

    If you have severe ME, how do you rate your current care and management by the NHS?

    • Excellent (2%, 5 Votes)
    • Good (4%, 13 Votes)
    • Average (10%, 31 Votes)
    • Poor (20%, 62 Votes)
    • Dreadful (17%, 53 Votes)
    • Non-existent (47%, 145 Votes)
    • Total Voters: 309

Start Date: July 4, 2014 @ 9:59 am
End Date: December 1, 2014 @ 2:00 pm

    If you have applied for ESA (Employment and Support Allowance), what was the outcome?

    • Awaiting a decision (9%, 27 Votes)
    • Placed in Support Group (31%, 92 Votes)
    • Placed in Work-Related Activity Group (16%, 48 Votes)
    • Refused - successful on appeal (12%, 35 Votes)
    • Refused - appeal in progress (2%, 6 Votes)
    • Refused - did not appeal (6%, 19 Votes)
    • Have not applied for ESA (20%, 61 Votes)
    • Refused – not successful on appeal (4%, 13 Votes)
    • Total Voters: 301

Start Date: June 1, 2014 @ 8:03 am
End Date: July 4, 2014 @ 11:31 am

    If the MEA wins some money in this month's Direct Debit voting contest, which of our biomed research priorities should it go to?

    • Rituximab trial (18%, 50 Votes)
    • Neuro-inflammation and post-mortem research (19%, 53 Votes)
    • Immune system research (48%, 131 Votes)
    • No preference (15%, 39 Votes)
    • Total Voters: 273

Start Date: May 1, 2014 @ 9:31 am
End Date: June 1, 2014 @ 8:09 am

    Personal Independence Payment (PIP) was born in April 2013. How long did it take to process your application and reach a decision?

    • One month (1%, 1 Votes)
    • Two months (0%, 0 Votes)
    • Three months (0%, 0 Votes)
    • Four months (2%, 3 Votes)
    • Five months (2%, 2 Votes)
    • Six months (3%, 4 Votes)
    • Six to nine months (5%, 7 Votes)
    • More than nine months (3%, 4 Votes)
    • Not applied for PIP (84%, 111 Votes)
    • Total Voters: 132

Start Date: April 1, 2014 @ 1:27 pm
End Date: June 1, 2014 @ 8:09 am

    NICE have stated that there is no reason to review their controversial guideline on ME/CFS. Do you agree?

    • Yes (27%, 128 Votes)
    • Not sure (2%, 9 Votes)
    • No opinion (0%, 1 Votes)
    • NO (71%, 337 Votes)
    • Total Voters: 475

Start Date: March 1, 2014 @ 12:33 am
End Date: June 1, 2014 @ 8:08 am

    To what extent do you also have gastric and bowel symptoms since being diagnosed with ME/CFS?

    • Constant (25%, 131 Votes)
    • Most of the time (47%, 249 Votes)
    • Occasionally (19%, 102 Votes)
    • Not at all (9%, 43 Votes)
    • Total Voters: 525

Start Date: February 1, 2014 @ 12:04 am
End Date: June 1, 2014 @ 8:08 am