Archive of MEA Surveys

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    Should or should not the anonymised data from the PACE trial be released for independent analysis?

    • Should be released (99%, 1,459 Votes)
    • Should not be released (1%, 8 Votes)
    • Not sure (1%, 11 Votes)
    • No opinion (0%, 2 Votes)
    • Total Voters: 1,480

Start Date: March 1, 2016 @ 11:02 am
End Date: No Expiry

    How long did it take from the onset of your ME/CFS symptoms to a doctor confirming a diagnosis of ME/CFS?

    • Less than 3 months (4%, 26 Votes)
    • 4 to 6 months (14%, 91 Votes)
    • 7 to 12 months (15%, 96 Votes)
    • 13 to 24 months (17%, 111 Votes)
    • 2 to 5 years (26%, 172 Votes)
    • 6 to 10 years (8%, 55 Votes)
    • Over 10 years (11%, 70 Votes)
    • Not certain (2%, 10 Votes)
    • Never confirmed by a doctor (3%, 25 Votes)
    • Total Voters: 656

Start Date: February 1, 2016 @ 10:26 am
End Date: March 10, 2016 @ 9:39 pm

    How do you rate the management of your ME/CFS that is provided by your usual NHS GP?

    • Excellent (4%, 19 Votes)
    • Good (9%, 44 Votes)
    • Fair (7%, 33 Votes)
    • Mixed - good and bad (16%, 77 Votes)
    • Poor (23%, 114 Votes)
    • Dreadful (23%, 114 Votes)
    • I don't have a GP (0%, 0 Votes)
    • I have no contact with my GP re: ME/CFS (18%, 87 Votes)
    • Total Voters: 488

Start Date: January 4, 2016 @ 9:23 am
End Date: March 10, 2016 @ 9:38 pm

    If you\'ve had a DWP benefit medical assessment with Maximus (who took over from Atos in April) how do rate them?

    • Excellent (7%, 2 Votes)
    • Good (13%, 4 Votes)
    • Fair (7%, 2 Votes)
    • Neutral (7%, 2 Votes)
    • Poor (27%, 8 Votes)
    • Dreadful (39%, 12 Votes)
    • Total Voters: 30

Start Date: December 3, 2015 @ 9:14 pm
End Date: March 10, 2016 @ 9:43 pm

    How do you rate the UK newspaper coverage of the latest PACE trial analysis that was published in Lancet Psychiatry?

    • Excellent (1%, 3 Votes)
    • Good (0%, 2 Votes)
    • Fair (0%, 2 Votes)
    • Mixed – Good and Bad (4%, 19 Votes)
    • Poor (11%, 47 Votes)
    • Dreadful (82%, 357 Votes)
    • No opinion (2%, 5 Votes)
    • Total Voters: 435

Start Date: November 2, 2015 @ 4:53 pm
End Date: March 10, 2016 @ 9:42 pm

    How long did it take between the onset of your symptoms and a firm diagnosis of ME/CFS being made by a doctor?

    • Less than 3 months (3%, 27 Votes)
    • 3 – 6 months (9%, 68 Votes)
    • 6 – 12 months (16%, 125 Votes)
    • 12 – 18 months (11%, 82 Votes)
    • 18 months - 2 years (10%, 79 Votes)
    • 2 – 4 years (18%, 138 Votes)
    • 5 years or more (26%, 199 Votes)
    • Never had a doctor diagnosis (5%, 35 Votes)
    • Awaiting a diagnosis (2%, 20 Votes)
    • Total Voters: 773

Start Date: August 31, 2015 @ 5:20 pm
End Date: March 10, 2016 @ 9:42 pm

    Are you still driving a car following a diagnosis of ME/CFS?

    • Yes - no change (16%, 70 Votes)
    • Yes - when I feel OK to do so (41%, 183 Votes)
    • Yes - on rare occasions (10%, 44 Votes)
    • No - but I'm keeping my licence (17%, 76 Votes)
    • No - I've surrendered my licence (3%, 14 Votes)
    • No - my licence was revoked by the DVLA (1%, 3 Votes)
    • I've never driven or owned a car (11%, 49 Votes)
    • No - for other reasons (cost etc) (1%, 8 Votes)
    • Total Voters: 447

Start Date: August 2, 2015 @ 2:31 pm
End Date: March 10, 2016 @ 9:41 pm

    Are you still driving a car following a diagnosis of ME/CFS?

    • Yes - no change (6%, 9 Votes)
    • Yes - when I feel OK to do so (47%, 69 Votes)
    • Yes - on rare occasions (18%, 27 Votes)
    • No - but I'm keeping my license (22%, 33 Votes)
    • No - I've surrendered my license (1%, 2 Votes)
    • I've never driven or owned a car (5%, 7 Votes)
    • No - my licence was revoked by the DVLA (1%, 0 Votes)
    • Total Voters: 147

Start Date: August 1, 2015 @ 7:23 pm
End Date: March 10, 2016 @ 9:41 pm

    If you have irritable bowel symptoms / syndrome in addition to ME/CFS, have you ever been tested to exclude coeliac disease?

    • YES - definitely (44%, 176 Votes)
    • YES - possibly (5%, 22 Votes)
    • I don't know (5%, 20 Votes)
    • NO (36%, 143 Votes)
    • I don't have any IBS symptoms (10%, 41 Votes)
    • Total Voters: 402

Start Date: July 2, 2015 @ 10:45 am
End Date: August 1, 2015 @ 7:25 pm

    Have you told us what you think of the MEA? Our survey and this poll are now CLOSED

    • YES - because I appreciate being asked (83%, 44 Votes)
    • YES - but only because I'm a member (2%, 1 Votes)
    • YES - but only because I'm a non-member (2%, 1 Votes)
    • NO – I'm not well enough to complete a survey (8%, 4 Votes)
    • NO - I dislike surveys on principle (0%, 0 Votes)
    • NO - Oh please! I have better things to do with my time! (5%, 3 Votes)
    • Total Voters: 53

Start Date: June 3, 2015 @ 8:06 am
End Date: No Expiry