Archive of MEA Surveys

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    Which supplement, if any, have you found to be the most helpful in the management of your ME/CFS?

    • carnitine (2%, 6 Votes)
    • co-enzyme Q10 (9%, 28 Votes)
    • EPA/eicosapentaenoic acid (2%, 7 Votes)
    • magnesium (12%, 39 Votes)
    • multivitamin preparation (2%, 8 Votes)
    • NADH/Enada (2%, 6 Votes)
    • vitamin B12 (11%, 35 Votes)
    • vitamin D (13%, 42 Votes)
    • none of them (30%, 98 Votes)
    • Never taken supplements (17%, 54 Votes)
    • Total Voters: 323

Start Date: July 1, 2016 @ 4:35 pm
End Date: August 4, 2016 @ 5:46 pm

    Have you had a blood test (25-hydroxyvitamin D) to check your vitamin D level? And if yes, what was the result before any treatment?

    • Raised (2%, 8 Votes)
    • Normal (10%, 34 Votes)
    • Low (22%, 77 Votes)
    • Very Low (30%, 105 Votes)
    • Awaiting result (0%, 0 Votes)
    • No - never tested (36%, 131 Votes)
    • Total Voters: 355

Start Date: June 1, 2016 @ 5:57 am
End Date: No Expiry

    How disabled are you at present on the MEA Disability Rating Scale? The scale is in 'Quick Links' immediately to the right of this question

    • 100% (3%, 9 Votes)
    • 90% (4%, 13 Votes)
    • 80% (14%, 42 Votes)
    • 70% (20%, 59 Votes)
    • 60% (21%, 62 Votes)
    • 50% (12%, 35 Votes)
    • 40% (12%, 35 Votes)
    • 30% (8%, 25 Votes)
    • 20% (3%, 8 Votes)
    • 10% (2%, 7 Votes)
    • 0% (1%, 3 Votes)
    • Total Voters: 298

Start Date: May 10, 2016 @ 8:56 am
End Date: No Expiry

    What happened if you recently applied for, or tried to renew, a Blue Badge (for disabled parking)?

    • Approved (25%, 52 Votes)
    • Approved following appeal/reconsideration (3%, 6 Votes)
    • Refused on first application (4%, 9 Votes)
    • Refused on renewal (3%, 6 Votes)
    • Awaiting decision (4%, 9 Votes)
    • Never applied for one (39%, 80 Votes)
    • Automatic acceptance following DLA or PIP mobility award (22%, 43 Votes)
    • Total Voters: 205

Start Date: April 2, 2016 @ 11:19 am
End Date: No Expiry

    Should or should not the anonymised data from the PACE trial be released for independent analysis?

    • Should be released (99%, 1,459 Votes)
    • Should not be released (1%, 8 Votes)
    • Not sure (1%, 11 Votes)
    • No opinion (0%, 2 Votes)
    • Total Voters: 1,480

Start Date: March 1, 2016 @ 11:02 am
End Date: No Expiry

    How long did it take from the onset of your ME/CFS symptoms to a doctor confirming a diagnosis of ME/CFS?

    • Less than 3 months (4%, 26 Votes)
    • 4 to 6 months (14%, 91 Votes)
    • 7 to 12 months (15%, 96 Votes)
    • 13 to 24 months (17%, 111 Votes)
    • 2 to 5 years (26%, 172 Votes)
    • 6 to 10 years (8%, 55 Votes)
    • Over 10 years (11%, 70 Votes)
    • Not certain (2%, 10 Votes)
    • Never confirmed by a doctor (3%, 25 Votes)
    • Total Voters: 656

Start Date: February 1, 2016 @ 10:26 am
End Date: March 10, 2016 @ 9:39 pm

    How do you rate the management of your ME/CFS that is provided by your usual NHS GP?

    • Excellent (4%, 19 Votes)
    • Good (9%, 44 Votes)
    • Fair (7%, 33 Votes)
    • Mixed - good and bad (16%, 77 Votes)
    • Poor (23%, 114 Votes)
    • Dreadful (23%, 114 Votes)
    • I don't have a GP (0%, 0 Votes)
    • I have no contact with my GP re: ME/CFS (18%, 87 Votes)
    • Total Voters: 488

Start Date: January 4, 2016 @ 9:23 am
End Date: March 10, 2016 @ 9:38 pm

    If you've had a DWP benefit medical assessment with Maximus (who took over from Atos in April) how do rate them?

    • Excellent (7%, 2 Votes)
    • Good (13%, 4 Votes)
    • Fair (7%, 2 Votes)
    • Neutral (7%, 2 Votes)
    • Poor (27%, 8 Votes)
    • Dreadful (39%, 12 Votes)
    • Total Voters: 30

Start Date: December 3, 2015 @ 9:14 pm
End Date: March 10, 2016 @ 9:43 pm

    How do you rate the UK newspaper coverage of the latest PACE trial analysis that was published in Lancet Psychiatry?

    • Excellent (1%, 3 Votes)
    • Good (0%, 2 Votes)
    • Fair (0%, 2 Votes)
    • Mixed – Good and Bad (4%, 19 Votes)
    • Poor (11%, 47 Votes)
    • Dreadful (82%, 357 Votes)
    • No opinion (2%, 5 Votes)
    • Total Voters: 435

Start Date: November 2, 2015 @ 4:53 pm
End Date: March 10, 2016 @ 9:42 pm

    How long did it take between the onset of your symptoms and a firm diagnosis of ME/CFS being made by a doctor?

    • Less than 3 months (3%, 27 Votes)
    • 3 – 6 months (9%, 68 Votes)
    • 6 – 12 months (16%, 125 Votes)
    • 12 – 18 months (11%, 82 Votes)
    • 18 months - 2 years (10%, 79 Votes)
    • 2 – 4 years (18%, 138 Votes)
    • 5 years or more (26%, 199 Votes)
    • Never had a doctor diagnosis (5%, 35 Votes)
    • Awaiting a diagnosis (2%, 20 Votes)
    • Total Voters: 773

Start Date: August 31, 2015 @ 5:20 pm
End Date: March 10, 2016 @ 9:42 pm