Archive of MEA Surveys

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    How do you rate the management of your ME/CFS that is provided by your usual NHS GP?

    • Excellent (4%, 19 Votes)
    • Good (9%, 44 Votes)
    • Fair (7%, 33 Votes)
    • Mixed - good and bad (16%, 77 Votes)
    • Poor (23%, 114 Votes)
    • Dreadful (23%, 114 Votes)
    • I don't have a GP (0%, 0 Votes)
    • I have no contact with my GP re: ME/CFS (18%, 87 Votes)
    • Total Voters: 488

Start Date: January 4, 2016 @ 9:23 am
End Date: No Expiry

    If you've had a DWP benefit medical assessment with Maximus (who took over from Atos in April) how do rate them?

    • Excellent (7%, 2 Votes)
    • Good (13%, 4 Votes)
    • Fair (7%, 2 Votes)
    • Neutral (7%, 2 Votes)
    • Poor (27%, 8 Votes)
    • Dreadful (39%, 12 Votes)
    • Total Voters: 30

Start Date: December 3, 2015 @ 9:14 pm
End Date: No Expiry

    Are you still driving a car following a diagnosis of ME/CFS?

    • Yes - no change (6%, 9 Votes)
    • Yes - when I feel OK to do so (47%, 69 Votes)
    • Yes - on rare occasions (18%, 27 Votes)
    • No - but I'm keeping my license (22%, 33 Votes)
    • No - I've surrendered my license (1%, 2 Votes)
    • I've never driven or owned a car (5%, 7 Votes)
    • No - my licence was revoked by the DVLA (1%, 0 Votes)
    • Total Voters: 147

Start Date: August 1, 2015 @ 7:23 pm
End Date: No Expiry

    If you have irritable bowel symptoms / syndrome in addition to ME/CFS, have you ever been tested to exclude coeliac disease?

    • YES - definitely (44%, 176 Votes)
    • YES - possibly (5%, 22 Votes)
    • I don't know (5%, 20 Votes)
    • NO (36%, 143 Votes)
    • I don't have any IBS symptoms (10%, 41 Votes)
    • Total Voters: 402

Start Date: July 2, 2015 @ 10:45 am
End Date: August 1, 2015 @ 7:25 pm

    Have you told us what you think of the MEA? Our survey and this poll are now CLOSED

    • YES - because I appreciate being asked (83%, 44 Votes)
    • YES - but only because I'm a member (2%, 1 Votes)
    • YES - but only because I'm a non-member (2%, 1 Votes)
    • NO – I'm not well enough to complete a survey (8%, 4 Votes)
    • NO - I dislike surveys on principle (0%, 0 Votes)
    • NO - Oh please! I have better things to do with my time! (5%, 3 Votes)
    • Total Voters: 53

Start Date: June 3, 2015 @ 8:06 am
End Date: No Expiry

    Will you be contacting your new MP after the election to ask him/her to join the All Party Parliamentary Group on ME at Westminster?

    • Definitely (31%, 45 Votes)
    • Probably (13%, 19 Votes)
    • Not sure (18%, 26 Votes)
    • Probably not (27%, 38 Votes)
    • Definitely not (11%, 15 Votes)
    • Total Voters: 143

Start Date: May 1, 2015 @ 10:10 am
End Date: No Expiry

    How helpful has your union/professional body been when you have asked for help with an employment problem?

    • Very helpful (0%, 0 Votes)
    • Quite helpful (0%, 0 Votes)
    • Not interested (0%, 0 Votes)
    • Neutral (0%, 0 Votes)
    • Unhelpful (0%, 0 Votes)
    • Very unhelpful (0%, 0 Votes)
    • Never asked for help (100%, 0 Votes)
    • Total Voters: 0

Start Date: April 1, 2015 @ 8:36 pm
End Date: May 1, 2015 @ 10:12 am

    If you are still able to work, how helpful is your employer re: modifications to hours, duties, etc?

    • Very helpful (9%, 21 Votes)
    • Quite helpful (5%, 12 Votes)
    • Varies: helpful and unhelpful (7%, 16 Votes)
    • Neutral (3%, 7 Votes)
    • Unhelpful (2%, 6 Votes)
    • Very unhelpful (7%, 16 Votes)
    • Unable to work (58%, 139 Votes)
    • I'm self-employed (9%, 24 Votes)
    • Total Voters: 241

Start Date: April 1, 2015 @ 8:40 pm
End Date: May 1, 2015 @ 10:12 am

    Should CFS and/or ME be renamed Systemic Exertion Intolerance Disease (SEID) as recommended in the U.S. Institute of Medicine Report?

    • Yes - but for CFS only (9%, 67 Votes)
    • Yes - but for ME only (3%, 26 Votes)
    • Yes - for CFS and ME (14%, 108 Votes)
    • Not sure (9%, 69 Votes)
    • No opinion (1%, 11 Votes)
    • No - do not like SEID (64%, 472 Votes)
    • Total Voters: 753

Start Date: March 1, 2015 @ 12:00 am
End Date: May 1, 2015 @ 10:13 am

    If you need to nap during the daytime, how do you generally feel afterwards?

    • Better cognitively, Unchanged physically (15%, 105 Votes)
    • Better physically, Unchanged cognitively (7%, 46 Votes)
    • Better - both cognitively and physically (29%, 198 Votes)
    • No change (13%, 90 Votes)
    • Worse - both cognitively and physically (15%, 107 Votes)
    • Worse cognitively, Better physically (5%, 32 Votes)
    • Worse physically, Better cognitively (3%, 18 Votes)
    • I don't nap in the daytime (13%, 95 Votes)
    • Total Voters: 691

Start Date: February 3, 2015 @ 9:00 am
End Date: No Expiry