Archive of MEA Surveys

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    Overall, how do you rate the June 27th BBC 'file on 4' radio programme that covered children with ME?

    • Excellent (9%, 11 Votes)
    • Very Good (19%, 24 Votes)
    • Good (28%, 36 Votes)
    • Average (10%, 13 Votes)
    • Poor (6%, 8 Votes)
    • Very Poor (2%, 3 Votes)
    • No Opinion (0%, 0 Votes)
    • I did not listen to it (26%, 33 Votes)
    • Total Voters: 128

Start Date: July 1, 2017 @ 2:05 pm
End Date: August 1, 2017 @ 2:05 pm

    Should doctors be allowed to prescribe speculative or experimental forms of treatment - e.g. antiviral drugs - for people with ME/CFS?

    • Yes - definitely (43%, 215 Votes)
    • Yes - in some circumstances (40%, 202 Votes)
    • Not sure (8%, 38 Votes)
    • No opinion (1%, 3 Votes)
    • Probably not (4%, 19 Votes)
    • Definitely not (4%, 22 Votes)
    • Total Voters: 499

Start Date: June 1, 2017 @ 10:00 am
End Date: No Expiry

    How much do you currently spend on vitamins, minerals and health supplements per month?

    • Nothing (25%, 96 Votes)
    • Up to £5 (15%, 57 Votes)
    • £6 to £10 (12%, 45 Votes)
    • £11 – £25 (16%, 59 Votes)
    • £26 – £50 (14%, 52 Votes)
    • £51 – £100 (10%, 38 Votes)
    • £101 – £250 (4%, 17 Votes)
    • Over £250 (2%, 8 Votes)
    • Don't know (2%, 6 Votes)
    • Total Voters: 378

Start Date: May 3, 2017 @ 1:22 am
End Date: No Expiry

    What was the result of your most recent blood test, or before treatment was given, to assess thyroid gland function?

    • low - hypothyroidism (19%, 66 Votes)
    • borderline low (14%, 48 Votes)
    • normal (44%, 150 Votes)
    • borderline raised (2%, 8 Votes)
    • raised - hyperthyroidism (2%, 6 Votes)
    • don't know (10%, 33 Votes)
    • never done (9%, 31 Votes)
    • awaiting results (0%, 1 Votes)
    • Total Voters: 343

Start Date: April 1, 2017 @ 8:00 am
End Date: No Expiry

    How often do you have sensory symptoms in the skin such as 'pins and needles', loss of sensation, or pain on touching the skin?

    • Constantly (20%, 109 Votes)
    • Frequently (41%, 229 Votes)
    • Quite often (19%, 104 Votes)
    • Occasionally (15%, 85 Votes)
    • Never (5%, 30 Votes)
    • Total Voters: 557

Start Date: March 1, 2017 @ 5:00 pm
End Date: No Expiry

    Where is your normal place of residence?

    • England (76%, 476 Votes)
    • Scotland (10%, 63 Votes)
    • Wales (3%, 22 Votes)
    • Northern Ireland (2%, 13 Votes)
    • Europe outside the UK (3%, 18 Votes)
    • North America or Canada (3%, 19 Votes)
    • Asia or Africa (0%, 2 Votes)
    • Australia or New Zealand (2%, 10 Votes)
    • Other (1%, 6 Votes)
    • Total Voters: 629

Start Date: February 2, 2017 @ 1:18 pm
End Date: No Expiry

    If you have been to an NHS ME/CFS clinic in the past year, how do you rate the advice/information that was given on management?

    • Excellent (5%, 9 Votes)
    • Good (11%, 21 Votes)
    • Adequate (6%, 11 Votes)
    • Mix of good and bad (13%, 24 Votes)
    • Poor (17%, 31 Votes)
    • Dreadful (23%, 42 Votes)
    • No advice given/required (3%, 5 Votes)
    • Waiting for an appointment (3%, 6 Votes)
    • Unable to get a referral (19%, 35 Votes)
    • Total Voters: 184

Start Date: January 3, 2017 @ 4:04 pm
End Date: February 2, 2017 @ 1:20 pm

    Overall, how is your state of health and disability compared to this time last year?

    • Recovered (0%, 2 Votes)
    • Almost recovered (1%, 3 Votes)
    • Much better (2%, 9 Votes)
    • A bit better (13%, 53 Votes)
    • Much the same (29%, 117 Votes)
    • A bit worse (29%, 120 Votes)
    • Much worse (26%, 105 Votes)
    • Total Voters: 409

Start Date: December 1, 2016 @ 11:26 am
End Date: No Expiry

    Following the re-analysis of the PACE trial data, should NICE remove its recommendations on CBT and GET?

    • Yes - definitely (92%, 704 Votes)
    • Yes - to some extent (6%, 49 Votes)
    • Neutral (1%, 4 Votes)
    • Not sure (0%, 0 Votes)
    • Probably not (0%, 3 Votes)
    • Definitely not (1%, 5 Votes)
    • Total Voters: 765

Start Date: November 1, 2016 @ 1:05 am
End Date: No Expiry

    Do you have a diagnosis of PoTS (postural orthostatic tachycardia syndrome) in addition to ME/CFS?

    • YES - definitely (21%, 66 Votes)
    • YES - probably (9%, 29 Votes)
    • Being assessed at the moment (3%, 9 Votes)
    • NOT SURE - never been assessed (46%, 148 Votes)
    • NO (21%, 68 Votes)
    • Total Voters: 320

Start Date: October 3, 2016 @ 3:20 pm
End Date: No Expiry

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