Archive of MEA Surveys

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    Has your GP ever referred you to a specific NHS consultant or ME/CFS service of your choice - regardless of location?

    • YES – successful (34%, 121 Votes)
    • YES – not successful (13%, 44 Votes)
    • NO – refused to do so (13%, 45 Votes)
    • NO – I've never asked (39%, 136 Votes)
    • NO – I do not have a GP (1%, 6 Votes)
    • Total Voters: 352

Start Date: July 31, 2014 @ 9:00 pm
End Date: No Expiry

    If you have applied for ESA (Employment and Support Allowance), what was the outcome?

    • Awaiting a decision (9%, 27 Votes)
    • Placed in Support Group (31%, 92 Votes)
    • Placed in Work-Related Activity Group (16%, 48 Votes)
    • Refused - successful on appeal (12%, 35 Votes)
    • Refused - appeal in progress (2%, 6 Votes)
    • Refused - did not appeal (6%, 19 Votes)
    • Have not applied for ESA (20%, 61 Votes)
    • Refused – not successful on appeal (4%, 13 Votes)
    • Total Voters: 301

Start Date: June 1, 2014 @ 8:03 am
End Date: July 4, 2014 @ 11:31 am

    If the MEA wins some money in this month's Direct Debit voting contest, which of our biomed research priorities should it go to?

    • Rituximab trial (18%, 50 Votes)
    • Neuro-inflammation and post-mortem research (19%, 53 Votes)
    • Immune system research (48%, 131 Votes)
    • No preference (15%, 39 Votes)
    • Total Voters: 273

Start Date: May 1, 2014 @ 9:31 am
End Date: June 1, 2014 @ 8:09 am

    Personal Independence Payment (PIP) was born in April 2013. How long did it take to process your application and reach a decision?

    • One month (1%, 1 Votes)
    • Two months (0%, 0 Votes)
    • Three months (0%, 0 Votes)
    • Four months (2%, 3 Votes)
    • Five months (2%, 2 Votes)
    • Six months (3%, 4 Votes)
    • Six to nine months (5%, 7 Votes)
    • More than nine months (3%, 4 Votes)
    • Not applied for PIP (84%, 111 Votes)
    • Total Voters: 132

Start Date: April 1, 2014 @ 1:27 pm
End Date: June 1, 2014 @ 8:09 am

    NICE have stated that there is no reason to review their controversial guideline on ME/CFS. Do you agree?

    • Yes (27%, 128 Votes)
    • Not sure (2%, 9 Votes)
    • No opinion (0%, 1 Votes)
    • NO (71%, 337 Votes)
    • Total Voters: 475

Start Date: March 1, 2014 @ 12:33 am
End Date: June 1, 2014 @ 8:08 am

    To what extent do you also have gastric and bowel symptoms since being diagnosed with ME/CFS?

    • Constant (25%, 131 Votes)
    • Most of the time (47%, 249 Votes)
    • Occasionally (19%, 102 Votes)
    • Not at all (9%, 43 Votes)
    • Total Voters: 525

Start Date: February 1, 2014 @ 12:04 am
End Date: June 1, 2014 @ 8:08 am

    What is the most important issue for The MEA to campaign on in 2014? You can tick up to six answers.

    • Benefits (57%, 212 Votes)
    • Medical Education (63%, 235 Votes)
    • NHS Services (52%, 195 Votes)
    • Nice Guideline Review (43%, 159 Votes)
    • Research (72%, 266 Votes)
    • Treatment Trials (56%, 208 Votes)
    • None of the above (1%, 4 Votes)
    • Total Voters: 372

Start Date: January 1, 2014 @ 12:03 am
End Date: June 1, 2014 @ 8:07 am

    Overall, what has happened to your ME/CFS over the past year?

    • Major improvement (3%, 10 Votes)
    • Minor improvement (17%, 64 Votes)
    • No change (25%, 95 Votes)
    • Minor deterioration (27%, 105 Votes)
    • Major deterioration (28%, 108 Votes)
    • Total Voters: 382

Start Date: December 1, 2013 @ 3:01 pm
End Date: June 1, 2014 @ 8:07 am

    Have you written to or visited your MP, MSP, AM, or MLA in relation to ME/CFS? If so, how helpful was his/her intervention?

    • Very helpful (6%, 11 Votes)
    • Partly helpful (13%, 25 Votes)
    • Not helpful (33%, 64 Votes)
    • Made things worse (2%, 3 Votes)
    • Never contacted an MP (46%, 89 Votes)
    • Total Voters: 192

Start Date: November 1, 2013 @ 8:39 am
End Date: December 1, 2013 @ 8:38 am

    What is your MAIN reason for using the MEA website?

    • Diagnosis (26%, 136 Votes)
    • Donating / Fundraising (0%, 1 Votes)
    • Finding a Local Group (5%, 26 Votes)
    • Finding an NHS Service (3%, 15 Votes)
    • The news blog (22%, 112 Votes)
    • Research (23%, 121 Votes)
    • Treatment (14%, 71 Votes)
    • Website poll (1%, 7 Votes)
    • Other (6%, 31 Votes)
    • Total Voters: 519

Start Date: October 1, 2013 @ 11:48 am
End Date: November 1, 2013 @ 8:01 am