In this section we are building up a collection of general documents for website visitors to download.
ME Association Documents
Illness Management Reports
June 2017: ME Association Review of GETSET: This randomised controlled trial aimed to demonstrate GET delivered remotely was able to improve physical function for people with ME/CFS. We explain why it didn’t and why other aspects of this trial – and the therapy – should be treated with caution.
October 2015: ‘No decisions about me, without me‘: Results of the 2012 ME Association Patient Survey Examining Acceptability, Efficacy and Safety of CBT, GET, and Pacing, as Interventions used as Management Strategies for ME/CFS: 278 pages
May 2010: ‘Managing my ME: What people with ME/CFS and their carers want from the UK’s health and social services’: Results of the ME Association’s major survey of illness management requirements: 32 pages
Governance and Operational Policy
Member/Non-Member Satisfaction Survey