ME Essential – our magazine

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Members receive a quarterly magazine called ME Essential. It covers our research news, keeps members up-to-date with medical/scientific developments and general news and features about the illness.

It is vitally important that you and others are kept informed of the latest research and development findings so that you can develop the ability to manage your symptoms effectively and improve your quality of life.

If you would like to refer to an article in a back issue, please refer to the ME Essential magazine index below.

Some key articles are available as ME Association leaflets but, if you are interested in seeing photocopies of other articles, please phone the office on 01280 818968 and make arrangements for them to be posted to you. A service charge may be incurred.

To become a member of The ME Association and be entitled to receive the magazine regularly, please click on the ‘Join the ME Association’ button on the right and follow the directions there.

MEE, page 1 Summer 2014 copy
 
 
 
 
 
 
 
 
 


LEFT: The cover of our latest issue of our ME Essential quarterly magazine, Copies are posted to every member of the ME Association.

 

FREQUENTLY ASKED QUESTIONS FROM ME ESSENTIAL MAGAZINE

UPDATED: February 2014

Acne treatment and ME, including Roaccutane (Autumn 2011)

Activity management – gym based programme (Autumn 2009)

Acyclovir and oral herpes (Summer 2012, page 14)

Addisons disease (Winter 2009)

Adrenal gland function – synacthen test (Autumn 2012)

Aids and adaptions (Autumn 2012)

Alcohol intolerance (October 2007)

Alcohol intolerance – what is the cause? (Spring 2012, p15)

Amitriptyline (Summer 2010, p9)

Amitriptyline for headaches (Spring 2011)

Ampligen – and FDA decision to not approve use in USA (Summer 2013)

Anaemia – iron deficiency (Autumn 2009)

Animal testing (Winter 2009)

Antibiotics – are they safe for people with ME/CFS? (April 2008)

Antidepressants: how quickly should I come off them? (Spring 2014)

Appetite – change in (Summer 2012, p14)

APPG on ME – information to give to MPs (February 2013)

BENEFITS

Atos interviews – permission to record (Summer 2012, p19)

Benefit medical examinations at home (Spring 05)

Carer’s credits (Autumn 2011)

Coffee drinking: how does it affect my brain? (Spring 2014)

ESA appeals (Winter 2010 and Autumn 2011)

Industrial Injury Benefit (Winter 2010, p13)

Sickness certificates from a GP (Spring 2011)

Supportive medical evidence – what can the doctor do? (Autumn 2013)

Test results – would it be worth including them on DWP application forms? (Summer, 2014)

Tribunal – attending one (Summer 2012, p14)

Beta blockers (April 2007)

Biobank – donations of blood samples (Spring 2011)

Blepharospasm – eyelid twitching (Summer 2013)

Blood donation and ME/CFS – can I give blood? (April 2008)

Blood pressure – high/hypertension (Winter 2013)

Blue Badge problems (April 2008)

Blue Badge refusals (Spring 2012, p15)

Body piercing – hazards of (Winter 2010, p12)

Book list (Autumn 2011)

Car driving – can I still drive? (February 2009)
Car driving – DVLA guidance (Autumn 2013)

Carer’s credits (Autumn 2011)

Cavity wall insulation (Winter 2012)

Changing a GP (Summer 2010, p8)

Chocolate (January 2008)

Classification of ME/CFS (Winter 2012)
Classification: Illness or Disease? (Summer 2012, p15)

Clinical trials – how do they work (Summer 2013)

Coeliac disease (April 2006)

Coeliac disease – home-testing kits (January 08)

Coeliac Disease and wheat intolerance (Winter 2010, p13)

Cognitive dysfunction – related to age (Spring 2014)

Cognitive dysfunction – severe (Winter 2013)

Cold fingers and toes (Spring 2010)

Contagious – is ME/CFS? Can it be passed to other family members (July 2008)

Cortisol – investigating low levels (November 2008)

Creatine kinase blood test (Winter 2010, p14)

Creatine supplements (April 06)

Critical Illness Insurance (Autumn 2009)

Curcumin for fatigue (Summer 2011)

Dental anaesthetics (Spring 2010)

Depression (February 2013)

Diabetes (Winter 2013)

Diagnosis – is it correct? (July 2008)

DISABILITY

Disability Discrimination Act (April 2007)

Aids and adaptions (Autumn 2012 and Summer 2013)

Disabled Facilities Grant (Summer 2013)

Disability leave – what is it? (Autumn 2013)

Disability rating scale (Autumn 2013)

Disabled students allowance (Winter 2009)

Dorsal root ganglionitis (Autumn 2012)

Driving a car with ME/CFS (Autumn 2013)

Dry eyes (Autumn 2009)

DLA care component: cooking test (January 2008)

Drugs, including statins, that can cause muscle problems (November 2008)

EMPLOYMENT

Employment problems (Autumn 05)

Employment: gradual return to work (Winter 2009)

Employment: ill health retirement criteria (Spring 2011)

Employment: should I tell my employer that I have ME/CFS (Spring 2011)

Employment: sickness certificates from a GP (Spring 2011)

Endometriosis (July 2007)

Ehlers-Danlos syndrome (Spring 2011)

Epidemiology – how many people have ME/CFS (Winter 2012)

Epileptic type seizures in ME/CFS (Spring 2012, p15)

ESA Appeals – Winter 2010 (p11)

ESR blood test (Spring 2010)

Eyelid twitching – blepharospasm (Summer 2013)

Fatigue levels increasing – explanations for (February 2013)

Fertility (February 2009)

Gabapentin for pain (Autumn 2012)

Gastric distress/motility problems (Winter 2009)

GENERAL PRACTICE

GPs – unhelpful: what to do (Jan 2008)

GPs – changing to another one (Summer 2010, p8)

Just what is a ‘fit note’? (Summer 2014)

Gilbert’s syndrome (February 2013)

Good days and bad days (Summer 2009)

Hair problems (Winter 2012)

Headaches (Winter 2009, p15)

Headaches: they’re getting worse. What can I do? (Spring 2014)

Headaches – use of amitriptyline (Spring 2011)

Headaches – use of tinted glasses (February 2013)

Haemochromatosis – misdiagnosis (July 2008)

Heat sensitivity (July 2007)

Herpes and acyclovir (Summer 2012, p14)

HIV/AIDS – as part of the differential diagnosis (Spring 2011)

Hospital services (February 2009)

Hyperacusis/sensitivity to loud noise (November 2008)

Hypermobility syndromes (Spring 2011; pwme contribution Spring 2012, pages 32 – 33; Winter 2013)

Hypertension (Winter 2013)

Hypnotherapy (Summer 2012, p15)

Hypnosis – what about its use for sleep disturbance? (Summer 2014)

Hypothalamic function (Spring 05 and Autumn 2011)

Ill health retirement (Spring 2011)

Immune system – overactivity (Summer 2012, p15)

Immune dysfunction in ME/CFS – tests, treatment (Autumn 2013)

Immunoglobulin treatment for chronic pain (Spring 2011)

Inherited – can ME/CFS be passed on to other family members? (October 2007, p13)

Industrial Injury Benefit (Winter 2010, p13)

INSURANCE

Critical illness cover (Autumn 2009)

Life insurance (Winter 2012)

PHI disputes (April 2008)

XMRV problems (Summer 2010, p8)

Iron supplements – can they improve fatigue levels? (Spring 2012, p15)

Isoprinosine/Imunovir (January 06)

Itching and fatigue (November 2008)

Jaundice (February 2013)

Joint hypermobility – see hypermobile joints

Joint pains (Autumn 2009)

Lightning Process (Summer 2010, p10) – and issue 105 (pages 40-41)

Liver function tests (July 2006)

Lumbar puncture (October 2007)

Lustral/sertraline (Autumn 2012)

Lyrica/pregabalin (Spring 2010)

Magnesium (Spring 2010)

Marshall protocol (Summer 2011)

ME ASSOCIATION

Paying for MEA literature (Winter 2010, p13)

Medical Research Council – why are they so reluctant to fund biomedical research into ME/CFS? (July 2008)

Medicines and drugs – cautions when buying on-line (Spring 2012, pages 16-17)

Melatonin (Spring 2005)

Memory and concentration problems (Summer 2009)

Menopause, HRT etc (January 08, p13)

Menopause – vaginal dryness/pain (Spring 2010)

Menstrual exacerbation of symptoms (Winter 2013)

Methyphenidate/Ritalin (July 2007)

Mitochondria – what do they do? (Summer 2013)

Mouth ulcers (Summer 2009 and Autumn 2012)

Muscle symptoms (Winter 2010 – p11)

Muscle: creatine kinase blood test (Winter 2010, p14)

Naltrexone (Autumn 2009 and Winter 2012)

Nausea (Summer 2013)

NICE guidelines and doctors freedom to prescribe (Summer 2010, p11)

Nimodipine – is this drug a new treatment for ME/CFS? (April 2008)
Nimodipine – why won’t my doctor prescribe this drug? (Summer 2013)

Night sweats and ME/CFS (Spring 2014)

Ovarian cancer – part of the differential diagnosis (Summer 2011)

Ovarian cancer and ME/CS symptoms (Spring 2014)

Overseas medical treatment and problems with entitlement to NHS care (November 2008)

Oxygen therapy (Winter 2010, p12)

Oxygen therapy – oxygen concentrators (Summer 2012, p15)

Overweight – can it have adverse effect on my ME? (Summer 2014).

PACE trial and inclusion of ME sub-group (Summer 2012, p16)

PAIN RELIEF

See: Gabapentin, Immunoglobulin, Pregabalin/Lyrica and TENS machine

Safety of over-the counter preparations (Spring 2012, p17)

Palpitations (Summer 2010, p11)

PHI/Permanent Health Insurance payment disputes (April 2008)

Pleconaril (Autumn 2005)

POST-MORTEM RESEARCH

Dorsal root ganglionitis (Autumn 2012)

Post-mortem research – what to do if you want to leave your body to ME research (November 2008 and Spring 2010)

Still being able to donate other body parts (Spring 2011)

How much tissue is required (February 2013)

Post-viral fatigue syndrome – what is it? (Spring 2011)

Pregabalin/Lyrica for pain relief (February 2010)

RESEARCH

Research – volunteering for (Summer 2009)

Research funding to NHS clinic – UK vs USA (Spring 2012, p17)

UK ME/CFS Research Collaborative (Summer 2013)

Restless legs syndrome (Spring 2011)

Roaccutane for acne (Autumn 2011)

Ribose – is it an effective supplement? (July 2008)

Rituximab – clinical trials (Summer 2013)
 
Rituximab – obtaining on NHS (Winter 2013)
 
Rituximab – when will it be available on the NHS> (Summer 2014)

Sertraline/Lustral (Autumn 2012)

SERVICES

Cuts to NHS services for ME/CFS (Autumn 2011)
&nbsp:
How can I get an NHS continuing care plan?
 
How to try and set an NHS clinic up post NICE (January 2008)
 
Long NHS Waiting lists (Winter 2010, p12)
 
Refusal to refer (Spring 2012, p17)

Shingles vaccine (Winter 2013)

Sickness – nausea (Summer 2013)

SLEEP

Research into sleep disturbance (February 2013)

Restless legs syndrome (Spring 2011)

Sleepiness during the day (April 2007)

Sodium oxybate (Summer 2012, p16)

Social care assessments (Spring 2011)

Sore throats – remedies (Summer 2014)

SPECT scans (Summer 2010, p9)

Statins and muscle problems (November 2008, p10)

Steroids (Summer 2009)

Synacthen test for adrenal function (Autumn 2012)

TENS machine (Winter 2009, p112)

Test for ME (February 2009, p12-13)

Throat and voice symptoms (Winter 2010, p12)

Thyroid function and ME (Spring 2009)

Thyroid: low thyroid function/hypothyroidism (Spring 2014)

Thyroid functions tests – regular monitoring (Summer 2011)

Tinted glasses for headaches (February 2013)

Tonsils removal (October 2007)

Travel sickness (Summer 2006)

Tremor in the hands (Autumn 2011)

Vaccinations (Autumn 2012)

Valganciclovir (October 2007 and Autumn 2011)

Vegetarians and anaemia (Autumn 2009)

Vitamin B12 injections (October 2006, p18)

Vitamin B12 testing (Summer 2011)

Vitamin C – high dose (Summer 2009)

Vitamin D deficiency and lack of sunshine (Spring 2014).

Weight gain and how to lose weight (October 2007)

Wheat intolerance (Winter 2010, p13)

XMRV and MLVs

XMRV – patient selection/criteria for research trials (February 2010)

XMRV – and insurance (Summer 2010, p8)

DRUG AND TESTING NOTES

Amitriptyline (Summer 2014)

Hydrogen sulphide urine test (August 2009)

Melatonin (as Circadin) becomes available on NHS prescription (July 2008)

Valganciclovir – meeting with Roche Pharmaceuticals (November 2008)

ENDS