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The ‘all in the mind’ myth of myalgic encephalomyelitis/chronic fatigue syndrome | Nursing in Practice | 27 June 2016

From Nursing in Practice | 27 June 2016 | Article written by Dr Keith Geraghty The ‘all in the mind’ myth of myalgic encephalomyelitis/chronic fatigue syndrome Health professionals should be…

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Cancellation of our Question Time in Durham later this year | 27 June 2016

Following discussion with ME North East, who were going to host this year’s MEA Question TIme meeting in Durham on Saturday September 17, we have reluctantly decided to cancel the…

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Indicator of chronic fatigue syndrome found in gut bacteria | Cornell Chronicle | 24 June 2016

From The Cornell Chronicle (Cornell University website) | 24 June 2016 | story by Krishna Ramanujan. Physicians have been mystified by chronic fatigue syndrome, a condition where normal exertion leads…

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TGI Friday! Our weekly round-up of recently published research abstracts | 24 June 2016

This week – how much do physios know about hyper mobility syndrome? & the value of online forums to people with chronic conditions.

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‘I regret that work came before family, says Caroline Wyatt’ | The Times | 21 June 2016

From The Times, 21 June 2016. Story by Kaya Burgess. The BBC journalist Caroline Wyatt says that having multiple sclerosis diagnosed has made her regret putting her career before family….

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IiME conference – another important day for sharing ideas on research | 20 June 2016

Dr Charles Shepherd reports on the 2016 Invest in ME conference, which was held in London on Friday June 3. The 11th annual conference saw a change in venue to…

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TGI Friday! Our weekly round-up of recently published research abstracts | 17 June 2016

From the Journal of Psychosomatic Research, published online 10 June 2016. Complementary and alternative healthcare use by participants in the PACE trial of treatments for chronic fatigue syndrome G. Lewith,…

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Parliamentary Question | difficulties in obtaining evidence of incapacity when people with M.E. claim PIP | 16 June 2016

The Countess of Mar, chairperson of the Forward ME Group of M.E. charities, tabled the following written question: To ask Her Majesty’s Government what form of evidence of incapacity is…

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Wales umbrella group asks members to help shape its future | 15 June 2016

In the run up to its AGM on Saturday, June 25, WAMES – the Welsh Association of ME and CFS Support – is asking supporters to help decide its work priorities…

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What we’re saying about Blue Badge refusals and ME/CFS | 14 June 2016

One of the problems relating to Blue Badge applications and ME/CFS involves the official government guidance that singles out M.E. as a condition that does not automatically qualify people for…

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New children’s and young people’s services for Cornwall and the Isles of Scilly | 11 June 2016

New services for children and young people under 16 with ME/CFS have been commissioned by Kernow Clincal Commissioning Group for patients registered with a GP in the county. Services now…

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‘Biopsychosocial’ basis for benefit cuts is ‘cavalier, unevidenced and misleading’ | Disability News Service | 9 June 2016

Professor Sir Mansel Aylward (pictured) – named as one of the co-authors of the biopsychosocial model of disability.

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PACE Trial follow-up | complementary and alternative healthcare use by participants | 10 June 2016

From the Journal of Psychosomatic Research, published online 10 June 2016. Complementary and alternative healthcare use by participants in the PACE trial of treatments for chronic fatigue syndrome G. Lewith,…

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TGI Friday! Our weekly round-up of recently published research abstracts | 10 June 2016

In the first item, Sophie Loup looks at a study into a drug combination that can improve outcomes in fibromyalgia.

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‘Pride in Mann: Celia has real passion and vision’ | Isle of Man Examiner | 2 June 2016

From the Isle of Man Examiner | 2 July 2016 | Story by Jackie Turley The vital role that Celia Marshall is playing in giving a voice to residents with…

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Why are we asking if you have been tested for vitamin D deficiency in this month’s MEA website poll? | 1 June 2016

Vitamin D deficiency can occur in ME/CFS and people in the moderate or severe category are at increased risk – especially if they are housebound and do not get out…

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The Eighth Edition of our clinical and research masterwork is published today | 1 June 2016

The Eighth Edition of ME/CFS/PVFS: An Exploration of the Key Clinical Issues – the ME Association’s clinical and research masterwork – is published today. Our first task will be to post…

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ME sufferer coming to the end of her step-by-step charity challenge | The Argus, Brighton | 31 May 2016

From The Argus, Brighton | 31 May 2016 | Story by Siobhan Ryan. A TEACHING assistant struck down by a debilitating illness with no known cure is set to finish…

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TGI Friday! Our weekly round-up of recently published research abstracts | 27 May 2016

From Arthritis Care and Research (Hoboken), January 2016. Gene Expression Factor Analysis to Differentiate Pathways Linked to Fibromyalgia, Chronic Fatigue Syndrome, and Depression in a Diverse Patient Sample. Iacob E,…

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Videocast scrutiny later today of major US federally-funded ME/CFS research initiative | 26 May 2016

People interested in following the money in ME/CFS research should watch a videocast later today of a discussion being held on the US Government’s latest federally-funded ME/CFS research initiative. Dr…