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‘We wanted good science – not this unseemly spectacle’ | MEA chairman on the PACE Trial débacle | 30 August 2016

In the latest edition of our quarterly magazine ME Essential, which was delivered to members today, MEA chairman Neil Riley writes: We are delighted that, despite the best efforts of…

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Marion Michell – BBC Woman’s Hour uncover a little bit of treasure | 30 August 2016

Marion Michell told her own severe M.E. story on BBC Woman’s Hour last Thursday (August 25). So far, it just hasn’t been picked up by the social media. But the…

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‘Chronic fatigue syndrome could be the body trying to hibernate’ | The Times | 30 August 2016

From The Times, 30 August 2016. Story by Tom Whipple, Science Editor. Online link to full story not available. Chronic fatigue syndrome may be caused by the body mistakenly going…

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‘Tribunal was right to order release of chronic fatigue trial data’ | The Conversation | 27 August 2016

From The Conversation blog, 27 August 2016. Words by Professor Jonathan Edwards, Professor Emeritus, University College London. After nearly four months deliberation a tribunal has dismissed an appeal.PDF) made by…

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TGI Friday! Our weekly round-up of recently published research abstracts | 26 August 2016

From the Journal of Psychosomatic Research, published online 17 July 2016. A UK-based review of recommendations regarding the management of chronic fatigue syndrome. Mallet M(1), King E(1), White PD(2). 1)…

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Depression – a revolution in treatment? | BBC News website | 24 August 2016

From the BBC News website, 24 August 2016. Words by James Gallagher, Rachael Buchanan and Andrew Luck-Baker. Listen to the programme ‘The Inflamed Mind’ on BBC Radio 4 tonight at…

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Teenager Tom aims to break a world record – running from Lands End to John O’Groats | 23 August 2016

Super fit teenager Tom Hunt is hoping to race into the Guinness Book of Records by becoming the youngest person to run from Land’s End to John O’Groats – as…

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Tribunal orders university to release data from PACE chronic fatigue study | BMJ news hub | 22 August 2016

From The BMJ news hub, 22 August 2016. Story by Ingrid Torjesen. A tribunal has ruled that Queen Mary University of London must release data from a trial looking at…

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ME Association to make six annual medical student awards this year | 23 August 2016

The ME Association is keen to encourage medical students to develop a clinical or research interest in ME/CFS at an early stage in their careers. Over the years we have…

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ME Association challenges Pulse Learning’s classification of ME/CFS as a mental health disorder | 21 August 2016

The ME Association has today asked the medical education website Pulse Learning to stop classifying Chronic Fatigue Syndrome (CFS) as a mental health disorder. Pulse Learning has just published a…

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Major breakthrough on PACE Trial | Centre for Welfare Reform | 19 August 2016

From The Centre for Welfare Reform, 19 August 2016. In a major breakthrough for people with ME/CFS a judge has rejected a university’s £200,000 attempt to prevent release of data…

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ME sufferer steps up in charity challenge | Worthing Herald | 18 August 2016

From the Worthing Herald, 18 August 2016. Story by Isabella Cipirska. (Online link not found). A former teaching assistant, who suffers from a debilitating illness that has at times left…

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US Federal agency downgrades its advice on CBT and GET | Occupy M.E. website | 16 August 2016

From the Occupy M.E. website, 16 August 2016. Words by Jennie Spotila. In response to requests by U.S. patient organizations and advocates, the U.S. Agency for Healthcare Research and Quality…

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Tribunal orders release of PACE Trial data (courtesy of Valerie Eliot Smith) | 16 August 2016

From Valerie Eliot Smith’s blog, 16 August 2016. QUEEN MARY UNIVERSITY OF LONDON v INFORMATION COMMISSIONER AND ALEM MATTHEES The First-Tier Tribunal judgment in this case (click on that link…

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Woman with severe M.E. ‘pans for poverty’ | Tearfund website | 25 July 2016

From the Tearfund website, 25 July 2016. Story by their website editor, Ben Cohen. A bedbound woman has helped to build toilets for some of the world’s poorest people –…

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TGI Friday! | Our weekly round-up of recently published research abstracts | 5 August 2016

One piece this week – Keith Geraghty in the ‘British Journal of General Practice’.

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Healthwatch Trafford reopen their ME/CFS survey (and launch one on fibromyalgia) | 4 August 2016

The results of a major survey into the health needs of people with ME/CFS, and how patients are being treated by GPs and hospitals – launched by Healthwatch Trafford last…

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Melbourn man wades through water to support ME sufferers like wife Sarah | Royston Crow | 29 July 2016

From the Royston Crow in Hertfordshire, 29 July 2016. A Melbourn man undertook a wading challenge to raise awareness of ME or Chronic Fatigue Syndrome to support sufferers such as…

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TGI Friday!| Our weekly round-up of recently published research abstracts | 29 July 2016

From the Journal of Psychosomatic Research, published online 19 July 2016. Enhanced psychological flexibility and improved quality of life in chronic fatigue syndrome/myalgic encephalomyelitis Sarah Densham(1), Deborah Williams(2), Anne Johnson(2),…