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Rituximab – update by The ME Association | 23 May 2016

Following the ME Awareness Week research and clinical meeting in Sussex where Dr Amolak Bansal provided an update on the current situation regarding the proposal to carry out a clinical…

Photo by Melanie Cherriman

reMEmber shine spotlight on ME/CFS research and management | Dr Shepherd reports on Burgess Hill meeting | 14 May 2016

Dr Amolak Bansal and Dr Charles Shepherd were spreading the word about ME/CFS at the reMEmber meeting on May 14.


ME Association’s contributions towards mitochondrial muscle research in ME/CFS | 17 May 2016

The ME Association is heavily involved in medical research that is exploring whether there are faults in mitochondrial muscle function that can be linked exclusively to ME/CFS. Following our joint…


UK ME/CFS Biobank opens for business | 13 May 2016

Dr Charles Shepherd reports on the ME Awareness Day meeting at the London School of Hygiene and Tropical Medicine (LSHTM) to celebrate the opening up of the ME/CFS Biobank for…


ME is more than just tiredness – the truth about chronic fatigue syndrome | Lifestyle | 12 May 2016

From Lifestyle, 12 May 2016. Words by Susan Griffin. People have long approached sufferers of myalgic encephalopathy (ME) with suspicion. Those living with ME – also known as chronic…

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Ten important things that people with M.E. want you to know | The Huffington Post | 12 May 2016

From The Huffington Post, 12 May 2016. Words by Natasha Hinde. It’s estimated that around 250,000 people in Britain are affected by ME, yet many people are still unaware of…


‘I’ve suffered with ME since I was eight – and the way I’m treated hasn’t changed in 30 years’ | The Independent | 12 May 2016

From The Independent (Voices), 12 May 2016. Words by Jason Reed. How do you write about living with an illness for almost 30 years without sounding like you’re whining? It’s…


Whitstable M.E. sufferer says GPs ignored her condition | Canterbury Times | 10 May 2016

A Whitstable mum whose battle with Chronic Fatigue Syndrome (M.E.) leaves her bedridden and in serious pain, says more needs to be done to raise awareness, after even her GPs…

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ME/CFS Disability Ratings Scale

For charting personal progress and helping with disability assessments.

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The MEA Disability Rating Scale, 2016

A disability assessment scale can be useful for following progress and providing information for benefit, employment and insurance assessments. We’re posting this to help participants in our latest Quick Survey…

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The importance of early and accurate diagnosis | helpful hints for healthcare professionals that could improve prognosis | 9 May 2016

This leaflet is also available as a FREE download HERE. INTRODUCTION ME/CFS is a complex multisystem disease that has a population prevalence of at least 0.2% to 0.4% (ie it…


M.E. Awareness Week, 9-15 May | This is what the ME Association will be doing…

In addition to ‘Going Blue’ the MEA is involved in a wide range of other activities which are designed to increase awareness and highlight the need for serious biomedical research…


TGI Friday! Our weekly round-up of recently published research abstracts | 6 May 2016

From Biofactors, published online 29 April 2016. Ubiquinol-10 [ie, Co-enzyme Q10] supplementation improves autonomic nervous function and cognitive function in chronic fatigue syndrome. Fukuda S(1,2,3), Nojima J(4), Kajimoto O(5), Yamaguti…

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M.E. Awareness Week, 9-15 May | SHE’S GOING BLUE – ARE YOU?

‘Going Blue’ – a colourful twist to an important week.

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The importance of early and accurate diagnosis

Early and accurate diagnosis may well put you on the road to recovery.

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‘Family’s battle against chronic fatigue of ME’ | The Harborough Mail | 29 April 2016

From the Harborough Mail, 29 April 2016. For many years, there was a debate as to whether chronic fatigue illness M.E. was actually a genuine illness at all. But Desborough…

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TGI Friday! Our weekly round-up of recently published research abstracts (and related items) | 29 April 2016

From Fatigue: Biomedicine, Health & Behavior, published online 28 April 2016 (open access). Editorial The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem Jonathan C.W. Edwards(a), Simon McGrath(b),…


Awareness Week: they’re going ‘Blue for M.E.’ – can you join them? | 9-15 May 2016

A big ‘Thank you’ to everyone who is planning on doing their bit in ME Awareness Week next month.