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#MillionsMissing –  round 2 today | Note about ME Association radio and TV interviews | 27 September 2016

BBC interviews about the #MillionsMissing demonstrations were recorded at our office in Buckingham yesterday for BBC Oxford Radio and for BBC TV South and that they should be broadcast today….

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Rows of empty shoes will represent Chronic Fatigue Syndrome sufferers at Millions Missing | Oxford Mail | 26 September 2016

From The Oxford Mail, 26 September 2016. Story by Pete Hughes. MORE than a hundred pairs of shoes will be lined up outside the Radcliffe Camera in Oxford tomorrow to…

Tom-Hunt

From one old codger to one young running star – well done, mate! You’re almost there…| 23 September 2016

Eighteen-year-old Tom Hunt, who is running all the way from Land’s End to John O’Groats – the equivalent of running 38 marathons back-to-back in 30 days – will complete his…

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‘PACE trial shows why medicine needs patients to scrutinise studies about their health’ | Simon McGrath on BMJ blogs | 22 September 2015

From BMJ blogs, 2 September 2016. Words by Simon McGrath. Like all patients, what I want most from clinical research is treatments that work, not ones that merely look good…

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Progesterone, infections, lung disease and the role of female hormone status in ME/CFS | 22 September 2016

Some interesting new research is being reported on how progesterone – a hormone that forms part of the contraceptive pill – plays a role in the response to infection, as…

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Preliminary independent analysis of PACE Trial recovery figures published today | 21 September 2016

From Vincent Rancaniello’s Virology blog, 21 September 2016. No ‘Recovery’ in PACE Trial, New Analysis Finds Last October, Virology Blog posted David Tuller’s 14,000-word investigation of the many flaws of…

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Christmas Cards 2016

Two cards – ‘Under the Baobab Tree’ and ‘Christmas Star’

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We’re out and about on BBC Radio Nottingham this morning | 19 September 2016

Our medical adviser Dr Charles Shepherd will be appearing on BBC Radio Nottingham’s Mark Dennison Show this morning (Monday, September 19). Also on the show will be Hannah Grundy –…

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Former teacher takes court action over insurance firm ‘spying’ on her | The Irish Times | 14 September 2016

From The Irish Times, 14 September 2016. Story by Aodhan O’Faolain. A former secondary school teacher and her children were “spied on” after she brought a legal action against insurance…

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TGI Friday! Our weekly round-up of recently published research abstracts | 16 September 2016

Just the one study this week – on cognitive behaviour therapy.

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Parliamentary Question | what steps are being taken to encourage research into ME? | 13 September 2016

Alex Chalk, Conservative MP for Cheltenham, asked the Secretary of State for Business, Energy and Industrial Strategy what steps he has taken to encourage research into myalgic encephalomyelitis? In a…

DWP

Parliamentary Question | what medical evidence is required for PIP claims? | 12 September 2016

Kevin Foster, Conservative MP for Torbay, asked the Secretary of State for Work and Pensions: “What forms of medical evidence his Department accepts for personal independence payments claims from a…

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MEA welcomes new report that supports wider use of medicinal cannabis | 13 September 2016

The ME Association has today welcomed the publication of a new report that supports the wider use of cannabis for medicinal reasons. Our medical adviser, Dr Charles Shepherd, said that…

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QMUL announce they comply with the PACE Trial Tribunal decision | 9 September 2016

Statement: Disclosure of PACE trial data under the Freedom of Information Act Statement from Queen Mary University of London (QMUL): A Tribunal has concluded by a 2:1 majority that certain…

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TGI Friday! Our weekly round-up of recently published research abstracts | 9 September 2016

This week – just one item based on a population-wide study in Norway.

Kaye Adams

Kaye Adams gets stuck into M.E. on her BBC Radio Scotland show this morning | 7 September 2016

Kaye Adams, the TV and radio presenter best known for her appearances on the popular daytime TV show ‘Loose Women’, really got stuck into M.E. on her BBC Radio Scotland…

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Tom runs from one end of the country to the other | Tunbridge Wells Times | 7 September 2016

From the Tunbridge Wells Times, 7 September 2016. Crowborough teenager Tom Hunt is aiming to become the youngest person to run from Land’s End to John O’Groats – and raise…

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‘I would wake up more tired than when I went to bed’ | Swindon Advertiser | 6 September 2016

From The Swindon Advertiser, 6 September 2016. One day, a fit and active Les Gubbins was struck down by a crippling tiredness. Here, he tells MARION SAUVEBOIS how he has…

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‘My life got taken away from me’ – what it’s really like to suffer from Chronic Fatigue Syndrome | Telegraph Online | 5 September 2016

From the Online Daily Telegraph (women’s page), 5 September 2016. Words by Hannah Radenkova. On hearing the news that Chronic Fatigue Syndrome (CFS) is finally being recognised by doctors as…