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TGI Friday! Our weekly round-up of recently published research abstracts | 24 March 2017

From BMC Medical Genetics (open access), 16 March 2017 Clinically proven mtDNA mutations are not common in those with chronic fatigue syndrome Elizna M. Schoeman (1, ^), Francois H. Van Der Westhuizen (2,…

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‘How a study about Chronic Fatigue Syndrome was doctored, adding to pain and stigma’| The Conversation | 23 March 2017

From The Conversation, a blog which proclaims it is all about ‘Academic rigour, journalistic flair’, 23 March 2017. Written by Steven Lubet, Williams Memorial Professor of Law, Northwestern University. The…

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Thanks to the MEA, you can now read the whole independent re-analysis of the PACE Trial recovery paper | 22 March 2017

The independent re-analysis of the PACE Trial recovery paper emerged from behind the publisher’s paywall today – after the ME Association paid US$2,000 for open access to the paper so…

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‘Moving Toward Answers in ME/CFS’ | NIH Director’s Blog | 21 March 2017

Blog written by Dr Francis Collins (director of US National Institutes of Health) and Dr Walter Koroshetz (director of the National Institute of Neurological Disorders and Stroke). Imagine going to…

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If you lived through the M.E. outbreak in Cumbria in 1955, please get in touch | 21 March 20187

The village of Dalston – centre of the 1955 M.E. outbreak

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‘Getting it wrong on Chronic Fatigue Syndrome’ | New York Times ‘Sunday Review’ | published online 18 March 2017

From the New York Times Sunday Review, 18 May 2017. Words by Julie Rehmeyer and David Tuller. What are some of the treatment regimens that sufferers of chronic fatigue syndrome…

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TGI Friday! Our weekly round-up of recently published research abstracts | 17 March 2017

Staff working for the UK ME/CFS Biobank at the London School of Hygiene and Tropical Medicine have had another paper published in a peer-reviewed journal.   Here, the team –…

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Manchester report reveals that many people with ME/CFS don’t trust their GPs | Healthwatch Trafford survey | 17 March 2017

More than half of people in the UK with ME/CFS said they wouldn’t trust their GP to give them information on their condition, a new report claims today. Healthwatch Trafford…

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Mast Cell Disorders and ME/CFS | note from Dr Charles Shepherd following last night’s BBC programme | 16 March 2017

We have been receiving a lot of inquiries about an item in a BBC TV programme last night that covered Mast Cell Disorders and a possible link to ME/CFS. The…

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Could you help this postgrad student with your experiences of complementary and alternative therapies? | 15 March 2017

Fiona Cox, a health psychology postgraduate at the University of the West of England in Bristol, is conducting a survey into the use of complementary and alternative therapies (CAM) by…

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Call for retraction of PACE publication | Centre for Welfare Reform | 13 March 2017

From The Centre for Welfare Reform, 13 March 2017. An open letter to the editors of the journal Psychological Medicine, calling for the retraction of the 2013 article “Recovery from…

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About The MEA

The ME Association aims to support people with ME/CFS through all stages of their illness. – ME/CFS is hard to accept. And those who do not accept their illness rarely…

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UK ME/CFS Biobank team urge resolution of long-standing disputes | Journal of Health Psychology | 10 March 2017

Staff working for the UK ME/CFS Biobank at the London School of Hygiene and Tropical Medicine have had another paper published in a peer-reviewed journal. Here, the team – whose running…

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TGI Friday! Our regular round-up of recently published research abstracts | 10 March 2017

From The Annals of Internal Medicine, Original Research, 7 March 2017. To read the comments of Dr Charles Shepherd, medical adviser to the ME Association, please click HERE. Cytokine Inhibition…

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Go Blue – Mark 2 – during ME Awareness Week in May 2017 | 9 March 2017

Please join us Going BLUE for ME in M.E. Awareness Week – which takes place from May 8 to 14.

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Why we shouldn’t dismiss the role of pro-inflammatory cytokines in ME/CFS | comment on Annals of Internal Medicine paper | 8 March 2017

Commentary by Dr Charles Shepherd, medical adviser, The ME Association. There are now some fairly robust and consistent findings from a number of recent ME/CFS research studies which have looked…

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Parliamentary Answer | minister responds to question about the next ICD listing for ME/CFS | 8 March 2017

The Countess of Mar, who chairs the Forward-ME Group of ME/CFS charities, tabled this written question on February 27: “To ask Her Majesty’s Government whether they will ask the Joint…

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Our big Christmas appeal – the final wrap-up| 7 March 2017

Story by Sarah Staples The ME Association’s most successful ever Christmas appeal has closed for donations after raising more than £68,000. Money raised by the Make ME Better campaign will…