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The Daily Mail: Why are doctors and patients still at war over M.E.? | 15 August 2017

  From Mail Online, by Jerome Burne, 15 August 2017. This article also made the hard copy edition of The Daily Mail. How the best treatment for the debilitating condition…

Caring for Mam: ‘I am functioning through a crisis’ writes Emma Hayes | 13 August 2017

Published in thejournal.ie, 13 August 2017 I CAN COUNT on one hand the amount of people I have shared my troubles with. Intensely private and protective of my mother, I…

NICE Guideline Review: We hear back from NICE about the identity of ‘topic experts’ | 13 August 2017

The ME Association learns that NICE consulted with a patient representative, two neurology experts, three psychiatry experts, and one paediatric expert over the recommendation to take ‘no action’ in the…

Top scientists gather at Stanford to share insights into ME/CFS | 13 August 2017

From The Mercury News, 12 August 2017. Stanford: Scientist searches for answer to his son’s devastating condition As a renowned Stanford scientist, Ron Davis has a deep appreciation for the…

Chief Medical Officer for England responds to MEA Petition against NICE guideline | 08 August 2017

  Dame Sally Davies, the Chief Medical Officer for England, today responded to our petition – supported by over 15,000 people – calling on the National Institute for Care and…

Severe ME Day – A time to reflect and to consider what we want to change | 08 August 2017

By Russell Fleming, Content Manager, ME Association. Severe ME Day is generally regarded as a time of remembrance for those who had been members of our community but were taken…

Buzzfeed News – This Is Why I Quit Exercise Therapy | 07 August 2017

By Camilla Maxted, 06 August 2017. When it comes to my illness, I’ve learned to listen to my symptoms, trust my body, and give it the one thing it really…

Stanford symposium to highlight new ME/CFS research | 07 August 2017

From Palo Alto Online, 05 August 2017. A community symposium with world researchers of one of the world’s most puzzling diseases will take place at Stanford University on Aug. 12….

The Times: Behind the story – A battle of prescriptions | 01 August 2017

By Oliver Moody and Tom Whipple, The Times, 01 August 2017. One lot of scientists is mocked as stooges of a free-market conspiracy to dismantle the welfare state. The other stands…

The Times: Scientists trade insults over myalgic encephalomyelitis (ME) study | 01 August 2017

The Times, 01 August 2017. An acrimonious scientific row has broken out after a £5 million publicly funded study investigating treatments for chronic fatigue syndrome was condemned as “deeply flawed”…

Stanford researchers identify biomarkers associated with chronic fatigue syndrome severity | 31 July 2017

The following is a press release from Stanford Medicine that had been subject to an embargo until 8pm UK-time. Researchers at the Stanford University School of Medicine have linked chronic…

Journal of Health Psychology: Special Issue on the PACE Trial – Introduction by David Marks | 31 July 2017

  In Saturday’s blog we featured a press release from the Journal of Health Psychology (The Pace Trial – The Making of a Medical Scandal). Today the Journal has published its…

Euromene: New European ME/CFS Biomarker database project | 31 July 2017

Last week, an inaugural review was published that presented a biomarker database initiative by EUROMENE, and will lead to better collaboration between ME/CFS research groups across Europe. The review also highlighted…

BBC Norfolk: How I fought chronic fatigue syndrome through art | 31 July 2017

Published online by BBC Norfolk, 29 July 2017. An artist diagnosed with chronic fatigue syndrome says painting helps her cope. Jasmine Farrow, 37, was diagnosed with chronic fatigue syndrome, also…

The PACE Trial: The Making of a Medical Scandal | 29 July 2017

Press release, Journal of Health Psychology, 28 July 2017. Journal of Health Psychology Special Issue on The PACE Trial, Vol. 22, No 9, Aug. 2017. A Special Issue of the…

Inspirational Exeter woman with ME gives hopes to others with illness | 28 July 2017

From DevonLive.com, 25 July, 2017. Like most people, “life and soul of the party” Mary Cousins took her good health for granted until she began experiencing excruciating stomach pains. In…

What is the prognosis for someone severely affected by M.E.? | 28 July 2017

We received the following questions from someone severely affected by M.E. – who has made no progress and is desperate to know if her health will improve – and thought…

The NICE guideline consultation: UK stakeholder submissions | 27 July 2017

NICE issued its surveillance proposal document two weeks ago and asked registered stakeholders to respond. The deadline for these submissions has now passed – though we understand at least one…

‘No confidence’: Charities reject NICE ‘no update’ proposal for ME/CFS guideline | 26 July 2017

Published online in Vada magazine, By Adam Lowe 26 July, 2017. Charities in the UK have delivered a resounding vote of ‘no confidence’ to NICE, the body which sets clinical guidelines for doctors…

Feedback requested on proposed relocation of Bath Mineral Hospital CFS/ME service for adults | 26 July 2017

This blog was first published 12 July 2017 We have been contacted by Bath NHS Foundation Trust who advised us of the Royal United Hospital’s proposal to relocate the adult CFS/ME…

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