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Reviewing the NICE guideline for ME/CFS: The Stakeholders Engagement Workshop – A Report by Dr Charles Shepherd | 17 January 2018

Dr Charles Shepherd summarises the key points to emerge from the NICE Stakeholders Engagement Workshop that took place on Tuesday 16th January 2018.

Scottish Parliament to host screening of Unrest – Invite your MSP to attend | 17 January 2018

Unrest is being shown at an event for MSPs at the Scottish Parliament on 30th January 2018. If you live in Scotland, this is an incredible opportunity to make a concerted impact on decision makers.

More ideas…

More fundraising ideas from the ME Association.

In Memory

If you feel that supporting the ME Association should be part of the celebration of the life of a loved one, then please do get in touch with Helen Hyland, our Fundraising Manager, and she will support you as best she can.

Business Fundraising

There are many ways in which your business or organisation can get involved in supporting the ME Association and the work that we do.

The Marketplace4ME

If you are a talented craftsperson, or fancy trying your hand at a new hobby – as and when you are able – why not join our growing ‘Marketplace’ team of craftspeople?

Events and Celebrations

Fundraising events can be a great way of bringing families, colleagues, and friends together to support a cause that’s close to your heart.

Challenges

There are many ways that you can challenge yourself to fundraise for the ME Association and have some fun at the same time.

Independent: Time for Unrest: Why patients with ME are demanding justice | 07 January 2018

A new film sheds light on a condition that is largely ignored. Nathalie Wright reports on the struggles patients face to be taken seriously by doctors.

“It has taken my life” – Sheringham woman speaks out about living with the debilitating disease ME | 06 January 2018

“I was fit, I went rambling and went to the gym,” she said. “But ME has taken my whole life and any fulfilment I might have had.”

Nature News Feature: A reboot for chronic fatigue syndrome research | 04 January 2018

This is an excellent feature article that focuses on the developing research situation in America, but also includes items relevant to the situation here in the UK.

Website survey: What do you think should be our research funding priorities for 2018? | 04 January 2018

We believe it is important to obtain regular feedback from people with M.E. as to what they regard as the most important priorities for UK research.

Peeblesshire News: Peebles gives Phoebe her perfect present | 02 January 2018

In October we reported how Phoebe Boag had reached out to locals to raise funds for an electric wheelchair, having been housebound for two years.

Buzzfeed News: A Controversial Therapy For ME Has Led To Claims Of Death Threats, Harassment, And Pseudoscience | 30 December 2017

A recent scientific trial has led to acrimonious debates over chronic fatigue syndrome, aka ME, and boosted interest in a secretive therapy that some call a “cult” and others call a “miracle”.

Belfast Newsletter: ‘We must keep believing science will catch up with ME. There is real hope’ | 22 December 2017

This is the fifth Christmas Paul will spend bedbound, away from his family, his partner Ciara and their son, Naoise.

He has borne this life changing illness with such strength and determination that all we can do is follow his lead and keep believing science will catch up with ME and that sufferers will finally get the care they deserve.

Fundraising Feature: Christmas Spirit – Courtesy of The Crooks | 21 December 2017

Last weekend, The Crooks, a lively saxophone quartet, played to the Christmas crowds at Borough Market in London, in aid of the ME Association.

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