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Midsomer Murders gets a Norfolk twist in new Cluedo board game | Eastern Daily Press | 31 January 2016

Hannah Radenkova takes a break from her M.E. to become a new character in the board game, Cluedo.


TGI Friday! Our weekly roundup of recently published research abstracts | 5 February 2016

This week – results of a online survey sent to 11 expert ME/CFS clinicians (from IACFS/ME journal).


‘Nearly 14,000 disabled people have mobility cars taken away’ | BBC News | 3 February 2016

From BBC News, 3 February 2016 (Story by Nikki Fox, disability correspondent). Nearly 14,000 disabled people who rely on a specialist motoring allowance have had their cars taken away from…


‘File on 4’ tonight – an exploration of the rare occasions when vaccines go wrong | 2 February 2015

‘File on 4’ on BBC Radio 4 at 8pm this evening will explore what happens on the rare occasions when things go wrong with the UK’s vaccination programme. The programme,…

volunteering image

How good might volunteering be as a way to get you back into paid work? | tell Work4ME in confidence | 2 February 2016

Work4ME, the Glasgow-based co-operative which aims to help people with long-term and chronic illnesses get back into employment, is conducting a confidential survey of people’s opinions of the challenges and…


How long did it take for you to obtain a diagnosis for your ME/CFS? | take part in our on-line survey for February 2016

In our ‘quick survey’ this month, we are asking people how long it took for them to obtain their diagnosis of ME/CFS – because we would like some up-to-date figures…


‘Agony uncle’ Graham Norton writes about M.E. in today’s ‘Daily Telegraph’ | 30 January 2016

From the ‘Daily Telegraph’, Lifestyle section, 30 January 2016. Dear Graham Norton: I have M.E. and can’t stop being jealous of friends I’m in my mid-30s, and I have M.E….

Gargunnock presentation

Little village Gargunnock shows its big heart for the ME Association | Stirling Observer | 29 January 2016

While the village of Gargunnock may be small, its residents have proved to be big-hearted when it comes to charity. Over the festive season, locals helped raise the sum of…


Could you run for us in the BUPA London 10k event on May 30? | 29 January 2016

We have places for this year’s BUPA London 10k run in London on May 20. Of course it’s NOT the London Marathon but, if you think of all the famous…


TGI Friday! Our weekly round-up of recently published research abstracts | 29 January 2016

This week – that controversial study in ‘Pediatrics’, microgenderome game-changer, dental amalgams.


Government told to restrict gabapentin and pregabalin availability | Pulse | 26 January 2016

From Pulse, 26 January 2016. Story by Caroline Price. The prescription drugs gabapentin and pregabalin could soon be more tightly regulated in the UK, after Government advisors called for them…

House of Lords, Victoria Tower

Tories defeated in Lords over plans to cut ESA by £30 a week | The Guardian | 27 January 2016

Lord Low: “…things can encourage disabled people into work but cutting their benefits is not one of them.”


‘Managing chronic fatigue is all about pace — do not go for boom or bust’ | Dr Mark Porter in ‘The Times’ | 26 January 2016

From The Times, 26 January 2016. New research suggesting that chronic fatigue syndrome is more common in teenagers than previously thought is bound to move the condition up the NHS…


Benefit cap on full-time carers for adult relatives to be scrapped | The Guardian | 26 January 2015

Charities hail major victory as it emerges that those who spend more than 35 hours a week caring will be exempt from the cap.

Wolfson College copy

Can you host the ME Association’s Autumn Roadshow this year? | 26 January 2016

Our M.E. Question Time – when it was held at Wolfson College, Cambridge, in 2014.


‘Chronic fatigue syndrome on the rise among 16-year-olds’ | BBC News | 25 January 2016

From BBC News, 25 January 2016. Chronic fatigue syndrome is more common than previously thought, particularly among girls at the age of 16, research by the University of Bristol suggests….


‘Woman whose life has been ruined by mystery illness for 16 years is finally diagnosed with Lyme Disease’ | Press Association | 8 January 2016 carried this item from the Press Association on 8 January 2016. A woman who has battled a string of debilitating illnesses for more than a decade has discovered it…


‘Employment and Support Allowance should not be cut – campaigners’ | BBC News + Petition | 23 January 2016

SIGN THE DISABILITY RIGHTS UK PETITION HERE From BBC News, 23 January 2016. Disability groups have written an open letter to Work and Pensions Secretary Iain Duncan Smith, urging him…

diploma course

We would like to hear from people who have been on this ME/CFS diploma course | 22 January 2016

An online awareness course in ME/CFS, with a diploma offered on completion, is being offered by an organisation called The Centre of Excellence Online. Details can be found here:…

An eye for research

UK ME/CFS Research Collaborative | Minutes of the executive committee meeting held on 15 January 2016.

Topics covered included a 10,000-person “Grand Challenge’, this year’s conference and a Code of Conduct for Communications.