The MEA Events Calendar

About 2,000 people a day are visiting this website and they might well be looking at this page. To have your event listed, please email Tony Britton or phone/text: 07516 656 537.

Thursday, June 20 (please note the change of date – WAS June 10)
Meet outside John Knox House (Scottish Storytelling Centre), 43 High Street, Edinburgh, at 11am
Edinburgh MESH tour of the ‘Hidden Gardens of the Royal Mile’ with Greenyonder Tours. This will be tailored for us – so not too much standing and the walking is gentle and downhill. You will hear about grand gardens of the past and be able to take a breather in a beautiful space. Details: Tour lasts 1 hour and 40 minutes. Cost: £3 to edmesh members and £5 to non-members. Normal cost of this tour is at least £7.
The walk finishes at the Scottish Parliament and we can then lunch in the Parliament Cafe. Lunch is optional and not included in above price.
To book a space contact Jeff on 07979 543 245. Please make cheques payable to edmesh.

Friday, June 21
Milton Keynes
Half day conference conference about ME/CFS in children and young people called by the Association of Young People with ME (AYME). The focus of the day is to provide quality, professional information and raise awareness of the condition amongst consultants, GPs, education and social care professionals, to reduce delays and issues with diagnosis, management and treatment in the region. The keynote speaker is Dr David Vickers, lead paediatrician, CFS/ME service for Children and Young People, Cambridge. To book, email events@ayme.org.uk. The conference costs £20, which includes a hot lunch.

Sunday, June 23
Bilton Community Centre, 48 Bilton Lane, Harrogate HG1 3DU, 10am-4pm
Open day to gauge the level of support for setting up an ME/CFS and FM Support for the Harrogate and Knaresborough area of North Yorkshire. The two ladies involved, Gemma Jewett and Barbara Morland, invite people to pop along and chat about what they would like to see in the group – what they want to get out of it, what activities they would like, etc, so that we can organise the group in such a way that it will benefit all the participants. For further details, please email Gemma at gemuett@btinternet.com

Thursday, June 27
Redmond Community Centre, High Street, Carcroft, near Doncaster, DN6 8DN, 1.30pm
Regular monthly meeting of the Doncaster, Barnsley and Dearne Valley Leger-ME Group. For more information about this group, please contact Mike Valentine at mike@danum.me.uk

Friday, June 28
Danny House, New Way Lane, Hurstpierpoint, BN6 9BB, 7.30pm
Special reMEmber fundraiser: Rt Hon Nicholas Soames, Conservative MP for Mid-Sussex, will talk about his grandfather, Sir Winston Churchill. The meeting at Danny House has a particular poignance for it was here, during the First World War, that several meetings of the Imperial War Cabinet of which Sir Winston was a member, took place in the Great Hall – the terms of the armistice to be offered to Germany were drawn up here and authority was given to US President Woodrow Wilson to negotiate the Armistice. Tickets £20 each to include wine and a finger buffet. Download the reMEmber flyer HERE.

Sunday, June 30
Haling Dene Centre, Penkridge, Straffordshire ST19 5DT
Zoe Ross will be taking part in the Penkridge Round Table Fun Run today to raise money for the MEA. If you would like to support Zoe’s fundraising, pleae visit her online page at www.justgiving.com/zoe-ross

Saturday, July 15
18 Nursery Gardens, Whittlesey, Peterborough PE7 1TE, 5pm
Peterborough ME Group event: fish and chip supper at the home of Marian and John Dunham. £1 admission – buy your own fish and chips but pudding and a cuppa will be provided. If you can, please bring your own fold-up chair. For nore information about the group, email pboromesg@ntlworld.com

Friday, August 2
Mont Blanc, Swiss Alps
Andy Pyatt, who suffered from ME for five years, will attempt to climb Mont Blanc over a six day period starting on August 2 in order to raise money for the MEA. Please support what he is doing by putting some money into his fund-raisibng account at www.justgiving.com/Andy-Pyatt

Sunday, August 4
Duddingston Kirk, Edinburgh, 1pm
The annual Edinburgh MESH garden party. Buffet, refreshments and raffle. Cost £6 for EdMESH members, £8 for non-members. Please send a cheque for the correct amount to Jeff Begg, 26 Lampacre Road, Edinburgh EH12 7HX, making the cheque payable to EdMESH.

Saturday, August 25
Dalkeith Country Estate, Dalkeith, Edinburgh EH22 2NJ
Alistair MacDonald will be taking part in the ‘Tough Mudder’ event to raise money for the ME Association. Previously super fit and having taken part in three marathons and several lesser events, he became ill with ME/CFS two and a half years ago; Alistair is now making a steady recovery from the illness. If you would like to support Alistair’s fundraising, please put some money into his online account at www.justgiving.com/allymacd1314

Sunday, August 25
Bray Lake, near Windsor
Jim Sahlsberg will be doing a 300ft crane bungee jump for the ME Association inspired by the experiences of his friend Amy, who has the illness. If you would like to support him, please tip a few quid into his fundraising account at www.justgiving.com/Jim-Sahlsberg

Sunday, September 1
Gordonstoun School grounds, Elgin, Moray IV30 5RF
Ellen Bland will be taking part in the Moray Half Marathon to raise money for the MEA. If you would like to support Ellen’s fundraising, pleae visit her online page at www.justgiving.com/Ellen-Bland

Sunday, September 8
Braydeston Church, Church Road, Braydeston, Norfolk NR13 5AP.
Diane Page will e taking part in the Braydeston 5k event today because her husband has ME. The race starts and finishes at Braydeston Church so please turn out to support her. If you would like to put some money into Diane’s fundraising account, please visit her online page at www.justgiving.com/Diane-Page1

Saturday, September 24
Dalkeith Country Estate, Dalkeith, Edinburgh E22 2NJ
One of the new breed of adventure obstacle courses, ‘The Tough Mudder’, is being run off here today. Alistair Macdonald, an ME slow recoverer from Bathgate, is taking part to raise money for The ME Association. If you would like to give him some encouragement, please tip a couple of quid into his online fundraising account at www.justgiving.com/allymacd1314

Saturday, September 28
The Public Hall, 3-5 West Street, Liskeard, Cornwall PL14 6BW, 2-5pm.
The ME Association will be holding its annual ‘ME Question Time” in Liskeard – with MESH Cornwall and Plymouth and District ME/CFS Group as our co-hosts. Panellists lined up so far include MEA medical adviser Dr Charles Shepherd, consultant paediatrician and ME specialist Dr Nigel Speight, ME/CFS specialist dietitian Sue Luscombe and Jane Colby, executive director of the Young ME Sufferers Trust. Free entry, all welcome – just turn up on the day. Disabled access and stairlift. Refreshments will be served in the interval. There is a pay-and-display parking at Westbourne Car Park opposite the hall.

Wednesday, 2 October – Thursday, 3 October
Jurys Hotel, Milton Keynes, Buckinghamshire
Annual conference of the British Association for CFS/ME(BACME). Speakers include Dr Gabrielle Murphy, Professor David Nutt, Professor Julia Newton, and Dr Amalia Houlton. Event closes with BACME AGM on Thursday afternoon. Booking and programme details HERE.

Sunday, October 27
Southsea, Portsmouth
Jessica Guelich, who dad has suffered with ME for the past 10 years, will be running in the BUPA Great Sound Run today to raise money for the MEA. If you wouuld like to support Jessica’s fundraising, please visit her online page at www.justgiving.com/jessica-guelich

Saturday, October 5
The Sir Harry Smith Community College, Eastrea Road, Whittlesey, near Peterborough PE7 1XB, 1.30 for 2pm
Special meeting of the Peterborough ME Group. Guest speaker: Dr Charles Shepherd, medical adviser, The ME Association. Plenty of car parking and entry to the hall is on the flat – so wheelchair access is good. Admission £5 adults (children free). For further information about the group, please contact Marian and John Dunham tel: 01733 203480 email: pboromesg@ntlworld.com

Saturday, October 19
Edinburgh MESH AGM and Meeting. Guest speaker, Dr Nigel Speight, paediatric medical adviser to The ME Association. More details coming soon.

2014

20-23 March
Parc 55 Wyndham Hotel, San Francisco
11th biennial international research and clinical conference of the International Association for CFS/ME, co-sponsored by Stanford University. Conference updates here: www.iacfsme.org/Home/ConferenceUpdates/tabid/451/Default.aspx

25-26 April
Bethesda Marriott, 5151 Pooks Hill Road, Bethesda MD 20814
Food and Drug Administration patient-focused drug development workshop for CFS/ME. Draft agenda can be downloaded HERE.

About 2,000 people a day are visiting this website and they might well be looking at this page. To have your event listed, please email Tony Britton or phone/text: 07516 656 537.