The NICE guideline consultation: UK stakeholder submissions | 27 July 2017


NICE issued its surveillance proposal document two weeks ago and asked registered stakeholders to respond.

The deadline for these submissions has now passed – though we understand at least one group has been granted an extension until Monday – but we thought it would be useful to maintain a list of them.

In our blog, ‘ME Association petition represents biggest expression of no confidence in a NICE guideline ever recorded‘, we provided:

The following is a list of submissions from patient organisations in the UK. If you know of any others then do please get in touch either by contacting me through MEA social media, or via email: russell.fleming@meassociation.org.uk

Stakeholder submissions in alphabetical order:

  1. 25% ME Group
  2. Action for ME
  3. Forward-ME Group
  4. Hope for ME & Fibro Northern Ireland
  5. Invest in ME Research
  6. LocalME
  7. #MEAction
  8. ME Association
  9. Suffolk, Norfolk and Essex*
  10. Tymes Trust
  11. WAMES

(*Suffolk Youth & Parent Support Group, Norfolk & Suffolk Service Design and Service Implementation Group, and Colchester MESH Essex)

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