Joint letter asks why PVFS, ME and CFS are missing from draft WHO reclassification | 17 March 2014

We have co-signed an open letter to the London-based chair of the World Health Organisation Neurology Topic Advisory Group asking why ME, CFS and PVFS have been left out of a draft reclassification of the world’s diseases.

The letter has been signed by Action for ME chief executive Sonya Choudhury, All Party Parliamentary Group chairman Annette Brooke MP, Forward ME Group chair The Countess of Mar and ME Association medical adviser Dr Charles Shepherd.

It says three terms contained in the last International Classification of Diseases (ICD-10) – Post Viral Fatigue Syndrome, Benign Myalgic Encephalomyelitis and Chronic Fatigue Syndrome – “have been missing from the public version of the ICD-!l Beta draft since early 2013″.

The letter calls on neurology topic advisory group chair Dr Ra’ad Shakir, who is chief of neurology for Imperial College NHS Trust in London, to end public speculation about the omissions by saying how these diseases are proposed to be dealt with in the ICD revision, which is due to be published some time in the next three years.

Read the open letter here