NHS specialist services throughout the UK

There is a growing number of specialist NHS services in England for people with ME/CFS. When we have reliable information, we hope to publish details of similar services in Scotland and Wales.

Contact details for the services appear below. Please remember that, while patients can contact any of the services for information, referrals for assessment, diagnosis and treatment must be made by your GP or the professional responsible for your health care.

The details given below could change at any time, and the management regimes vary from place to place. The ME Association tries to keep the contact information up-to-date but we cannot be held responsible for the consequences of any inadvertent errors or delays in updating this information.

If you spot any mistakes and wish to notify us of any omissions, please email us

NB The ME Association is collecting feedback on these services and we welcome comments from people who have been referred for either diagnosis or management. In the meantime, if you require further information on what sort of approach is being taken at a specific clinic you could approach the service direct or contact a local ME group.


CLINICAL NETWORK COORDINATING CENTRES

There are 12 Clinical Network Coordinating Centres (CNCCs) across England – championing the development of services and improved clinical care in their area. Each CNCC has an individual, named clinical champion or network co-ordinator. Advice to patients, GPs and carers about services is available from the Network Co-ordinator at each centre.

Northern

(North of Tyne, South of Tyne, Durham and Darlington, Cumbria North.

There is no specialist NHS service on Teeside).

Tel: 0191 291 9292

(Clinical champion: Dr Gavin Spickett, consultant clinical immunologist, The Newcastle upon Tyne Hospital NHS Trust, Royal Victoria Infirmary, Queen Victoria Road, Newcastle upon Tyne NE1 4LP. Network co-ordinator: Louise Wilson, email: lou.wilson@nhs.net

North, East and West Yorkshire

Tel: 0113 3056513 / 0113 3056521 / 0113 3056497

(Clinical champion: Ms Sue Pemberton, consultant occupational therapist, Leeds CFS Service, J Ward, Seacroft Hospital, Leeds LS14 6UK).

Liverpool and Merseyside

Tel: 0151 706 3836

(Clinical champion: Dr Alistair Miller, consultant physician, Tropical and Infectious Diseases Unit, Royal Liverpool University Hospital). 

Greater Manchester

Silk House, Holyoak Street, Newton Heath, M40 1HA

Tel: 0161 219 9420

Email:

(Clinical champion: Dr Damien Longson, consultant liaison psychiatrist, North Manchester General Hospital, Safire Unit, Park House, Delauneys Road, Crumpsall, Manchester M8 6AR. Network co-ordinator: Gillian Walsh).

South Yorkshire and North Derbyshire

Tel: 0114 229 2920

(Clinical champion: Professor Chris D Ward, professor of rehabilitation medicine, University Rehabilitation Research Unit, Derby City General Hospital, Uttoxeter Road, Derby DE22 3NE).

East Midlands

Tel: 01332 785913

(Network co-ordinator: Julia Grace, c/o Rehabilitation Centre, Derby City Hospital, Uttoxeter Road, Derby DE22 3NE). Email: julia.grace@derbyhospitals.nhs.uk

East Anglia

Tel: 01493 452073

(Norfolk, Suffolk, Cambridgeshire, Peterborough)

(The service has been under review since the retirement of Dr T Mitchell.)



North London/Essex/Sussex and Hertfordshire


Tel: 020 7601 8108 / 020 7601 8511 (Joint clinical champions: Professor Peter D White, Professor of Psychological Medicine at Barts and the London School of Medicine and Dentistry, and Dr Maurice Murphy, consultant in immunology and HIV medicine, ME/CFS Service, St Bartholomew’s Hospital, P O Box 8108, William Harvey House, 61 Bartholomew Close, London EC1A 7BE).GPs refer to Pat Baker, tel: 020 7601 8108, other enquiries to Pauline Stone, tel: 020 7601 8511).

South West London/Surrey (Sutton)

Tel: 0208 296 4152

(Clinical champion: Dr Amolak Bansal, Department of Immunology, St Helier Hospital, Wrythe Lane, Carshalton, Surrey SM5 1AA).

Dorset/Hampshire and Isle of Wight

Tel: 01929 557560

(Clinical champion: Dr Selwyn Richards, consultant rheumatologist, Poole Hospital NHS Trust, Longfleet Road, Poole, Dorset BH15 2JB).

Avon, Wiltshire, Gloucestershire & Somerset

Tel: 0117 918 6795

(Clinical champion: Dr Hazel O’Dowd, clinical psychologist, Pain Management Centre, Ward 22, Frenchay Hospital, Frenchay Park Road, Bristol BS16 1LE. This clinical network co-ordinating centre is available on Tuesday and Wednesdays).

South-West Peninsula

(Cornwall and Devon)

Tel: 01872 252935

(Clinical champion: Professor Tony Pinching, Associate Dean for Cornwall, Peninsula Medical School, Peninsula Medical School Offices, Royal Cornwall Hospital, Truro TR1 3LJ).

NB A 13th Clinical Network Coordinating Centre, covering the West Midlands and Birmingham, has closed due to non-renewal of funding. It is understood that the consultant in charge is still involved with the ME/CFS specialist service in the area.


NATIONAL DIAGNOSTIC AND SPECIALIST REHABILITATION SERVICE

This service, based in the regional Essex Neuroscience Unit at Queen’s Hospital in Romsford, has a national inpatient service and a national outpatient service. The clinical lead is consultant neurologist Professor Leslie Findley and his associate specialist is Dr J Davis.

The inpatient unit on Sahara A Ward has eight dedicated beds for patients with ME/CFS – the only unit of its type in the UK. The average length of stay is three months.

The inpatient service offers a wide range of evidence-based treatments including:

  • Diagnosis and management
  • Nursing care
  • Lifestyle management
  • Graded activity
  • Nutritional programmes
  • Individual, couple and family counselling as required
  • Psychological assessment 
  • Support with housing and benefits
  • Discharge planning Step down facility to facilitate the transition from hospital to home 
  • Follow up clinics in the medical/occupational therapy clinic

CONTACT DETAILS

Medical inquiries: Valerie Day, medical secretary (Monday-Friday, 9am-5pm) – Tel: 01708 435 044  Fax: 01708 435 246  Email

Therapy inquiries:Therapy secretary (Monday-Friday, 9am-5pm) – Tel: 01708 435 044  Fax: 01708 435 246  Email

Referral and Inpatient/Outpatient Funding inquiries: Tracy Grover, administrative assistant (Monday-Friday, 8am-2.30pm) – Tel: 01708 435 044  Fax: 01708 435 246   Email

General Team inquiries: Address and fax as above. Tel: 01708 435 044 (Monday-Friday 8am-4pm), Email


ADULT TEAMS

London

King’s College Hospital

Chronic Fatigue Research and Treatment Unit, Mapother House 1st Floor, De Crespigney Park, Denmark Hill, London SE5 8AZ  Tel: 0203 228 5075  Fax: 0203 228 5074.

Royal Free Hospital

The Fatigue Service, Department of Infection and Immunity, Royal Free Hospital, Pond Street, London NW3 2QG.

Tel: 020 7599 1712

[Consultant: Dr Gabrielle Murphy (part-time). Areas covered: Barnet, Camden, Enfield, Haringey and Islington.] 

Royal London Homeopathic Hospital

Adult Chronic Fatigue Service, Royal London Homeopathic Hospital, 60 Great Ormond Street, London WC1N 3HR. Tel: 020 7391 8975 (UCLH internal 18975)  Fax: 020 7391 8869

[Consultants: Dr Saul Berkowicz, Dr Helmut Roniger and Dr Christian Hasford. This is the adult service for University College Hospital, London as a whole. Although physically based within the RLHS, it is not a homeopathic service but offers all interventions recommended by the National Institute for Health and Clinical Excellence in their ME/CFS Guideline – including consultant physician assessment, activity management, exercise and psychological interventions including medical hypnosis, autogenic training and CBT. Clinical lead: Dr Saul Berkovitz. The team consists of three consultant physicians, a senior nurse practitioner, occupational therapist, physiotherapist and dietitian. The team also can advise on appropriate complementary medicine interventions and, in some cases, provide them – such as acupuncture for chronic widespread muscle pain. Referrals through the patient's GP or NHS hospital consultant]

St Bartholomew’s Hospital

(for people living in North London, Essex, Sussex and Hertfordshire).

Tel: 020 7601 8108

61 Bartholomew Close. London EC1A 7BE (see information under ‘Clinical Network Coordinating Centres’).

Bath and Wiltshire

Royal National Hospital for Rheumatic Diseases, Upper Borough Walls, Bath, Somerset BA1 1RL.

Tel: 01225 465941 (ext 202), email: diane.farmer@rnhrd.nhs.uk

Provides a service for the following Primary Care Trusts: Bath and NE Somerset, Kennet and North Wiltshire, West Wiltshire, South Wiltshire and Swindon. Based in Bath, but with services in Salisbury and Swindon. [Team comprises Occupational Therapist, three GPs with a special interest, psychologist, physiotherapist and administrator]

Buckinghamshire

Buckinghamshire Chronic Pain and Fatigue Management Service, Rayners Hedge, Croft Road, Aylesbury, Bucks HP21 7RD, tel: 01296 393319.

[Clinical lead: Dr John Pimm, consultant clinical psychologist.. Interdisciplinary service offering cognitive behaviour therapy, graded exercise therapy and self-management programmes looking at physical, practical and psychological strategies for managing ME/CFS. The service has been running for 10 years. The team is in the process of setting up an in-patient service for people with moderate to severe symptoms. Referrals need to come through a medical practitioner or allied health professional e.g. GPs, hospital consultants, physiotherapists. If people live outside the area then out-of-area funding needs to be applied for.]



Bury and Bolton


In Bury, the adult service is provided at the Prestwich Walk-In Centre, Fairfax Road, Prestwich M25 1BT.

In Bolton, the service is at Hulton Lane Hospital, Deane, Bolton BL3 4JZ.

Tel: 01204 360071

[Lead physician: Dr Andrew Wright, c/o Neurological Rehabilitation Team, Lever Chambers, Ashburner Street, Bolton B4 1SQ]

Bristol, North Somerset and Gloucestershire

Based in the Pain Management Centre, Ward 22, Frenchay Hospital, Bristol. This service has access to occupational therapy, physiotherapy, psychology, counselling and a specialist GP.

Tel: 0117 918 6795

Email: CFS.NHS.Frenchay@nbt.nhs.uk

Cambridgeshire and Peterborough

Tel: 01733 774583

Nurse specialist: Barbara Boyden

Botolph Bridge Community Health Centre, Sugar Way, Woodston, Peterborough PE2 9QB

[This service is based in Peterborough but we understand efforts are being made to open another clinic in the Cambridge area]

Cheshire

There are no specialist ME/CFS services in Cheshire.

Cornwall

Clinics in Truro, Bodmin, Camborne/ Redruth, Helston, Poltair and Stratton.

Contact information: Sharon Penhaligon, Heligan Portacabin, Royal Cornwall Hospital, Truro, Cornwall TR1 3LJ, tel: 01872-252935 fax: 01872 256401, email: sharon.penhaligon@rcht.cornwall.nhs.uk The service offers an outpatient and community-based service for patients suspected of having CFS/ME, providing diagnosis, assessment, and a clinical management plan to enable long-term rehabilitation, sharing care with the GP and returning the patient to primary care following re-enablement. The team comprises a clinical immunologist, a GPwSI, a consultant clinical psychologist, four occupational therapists and a clinical secretary/administrator.

Services for children: There is a separate service for children and young people affected, run within paediatrics, up to the age of 18. Transition is managed jointly.

Key personnel: Professor Anthony Pinching (consultant), Marc Kelly (matron),

Dr Cristina Lopez-Chertudi (consultantclinical psychologist), Carol Wilson (head occupational therapist).

Cumbria (North)

North Cumbria CFS/ME Service, Keswick Community Hospital, Crosthwaite Road, Keswick, Cumbria CA12 5HP.

Tel: 01768 767 033 Mob: 01771 754 1783.

This service has clinics in Keswick, Penrith, Carlisle, Wigton and Whitehaven. (Clinical champion, Dr Gavin Spickett (consultant clinical immunologist); Heather Garry, occupational therapist; Steve Atkinson, physiotherapist; Sue Watkinson, cognitive behavioural therapist and children’s and young people’s service; Laura Wilson, children and young people’s CFS/ME practitioner). 

Cumbria (South) – See entry for Lancashire and South Cumbria

Derbyshire

Tel: 01332 786657

(Clinical lead: Bozena Smith, occupational therapist, Rehabilitation Centre, Derby City Hospital, Uttoxeter Road, Derby DE22 3NE)

Devon (North, East,, Mid and Exeter)

Wonford House Hospital, Dryden Road, Exeter EX2 5AF

Tel: 01392 208614

Devon (South and West)

This service covers Plymouth, South and West Devon (Torbay, Devon and Plymouth Primary Care Trusts).

Castle Circus Health Centre, Abbey Road, Torquay TQ2 5YH

Mon – Fri 9am-5pm

Tel: 01803 217721  Fax: 01803 217799.

[Team members: Lyn Hunter consultant Occupational Therapist and service lead clinician; Kirsty Penman, specialist Occupational Therapist and deputry service lead; Dr Jo Gosling and Dr Isabel Ewart, Clinical Psychologists; Dr Robert Gardner, GP with a special interest. There is also physician support in clinical immunology, endocrinology, and liaison psychiatry. GP referrals only from Plymouth, South Hams and West Devon, Teignbridge and Torbay].

Dorset

Tel: 01929 557560

This service is provided through an outpatient clinic at Wareham Community Hospital, Streche Road, Wareham, Dorset BH20 4QQ. The service – which has been suported throughout by the Dorset ME Group – celebrated its tenth anniversary in 2009. The clinical lead is Dr Selwyn Richards, a consultant rheumatologist.

Durham and Darlington

CFS/ME Service, St Margaret’s Health Centre, St Margaret’s Garth, Crossgate, Durham DH1 4DS. For information about accessing this service or managing the illness, contact the following, tel: 0191 370 9486 – Kristi Greensmith, CFS/ME administrator, Vicki Piggott, clinical specialist physiotherapist CFS/ME, Marie Liddell, clinical specialist occupational therapist.

[The service only accepts referrals from GPs in Durham and Chester-le-Street, Derwentside, Dales, Darlington, and Sedgefield. In October 2008, it was announced that two new weekly ME/CFS clinics have opened at Healthworks in Easington and Shotley Bridge Hospital]

Essex Neurosciences Unit (Chronic Fatigue Service)

Sahara A Ward, Queen’s Hospital, Rom Valley Way, Romford, Essex RM7 0AG

The only dedicated ME/CFS ward in the UK, with eight beds.

Tel: 01708 435044

(Clinical lead: Professor Leslie Findley, consultant neurologist. Multi-disciplinary team includes Occupational Therapists, Physiotherapists, Dietitian, Psychologists, and Counsellors).

Essex-wide

Managed from Southend Hospital NHS Foundation Trust, Prittlewell Chase, Westcliff on Sea, SS0 0RY

Service administrator: Jennifer Cassells Tel: 01702 385 247 Fax: 01702 385 904

This service offers a consultant assessment for diagnosis, and therapy services including Graded Exercise, Pacing and Activity Management and CBT. These sessions are available at Colchester Primary Care Centre, Broomfield Hospital in Chelmsford and at the Tyrell’s Centre in Benfleet.

Access to the service is via GP referral.

Hampshire and Isle of Wight

Hampshire and Isle of Wight Chronic Fatigue Service

Fairways House, Mount Pleasant Industrial Park, Southampton SO14 0SP.

Tel:023 8024 1348 Fax: 023 8023 7986  

The service provides county-wide diagnosis, treatment (time-limited), information and support for adults with mild/moderate ME/CFS. A clinic is held both at Fairways House and on the Isle of Wight. Occupational therapy-led specialist lifestyle management groups are offered at various places around the county, once a diagnosis has been established/confirmed. (Key staff: Occupational Therapist (team leader), GP with a special interest, specialist OT, OT assistant, admin support). 

Portsmouth Chronic Fatigue Syndrome Service

Eastney Health Centre, Highland Road, Southsea PO4 9HU

Tel:023 9283 3111 Fax: 023 9273 8587  

The Chronic Fatigue Syndrome service offers treatment programmes for people diagnosed with Chronic Fatigue Syndrome or Myalgic Encephalomyelitis (ME).  This is a community-based service for adults aged 16 years and over.  The team consists of a Specialist Practitioner and an Occupational Therapist.  The service offers assessments to help GPs confirm diagnosis and treatment programmes aim to improve the self-management of symptoms, increase functioning and improve quality of life.

Harrogate, North Yorkshire

CFS/ME service, Briary Wing, Harrogate District Hospital, Lancaster Park Road, Harrogate HG2 7SX.

Tel 01423 553526 Fax: 01423 553586.

[Julie Robinson, occupational therapist (Team Leader). The service was set up by North Yorkshire and York Primary Care Trusts and covers Harrogate, Ripon, Skipton and surrounding areas. It hopes to expand in the future].

Herefordshire and Worcestershire

Tel: 01562 823424 (ext 53436)

[Dr Mark Roberts, specialist in infectious diseases, is the lead clinician. Occupational

therapist Sue Gordon-Saner is the service coordinator. The service-cordinator for Herefordshire is Lynne Williams, occupational therapist, tel: 01432 347641]

Hillingdon and Harrow

Tel: 01895 279 374

Greenacres Centre, Hillingdon Hospital, Field Heath Road, Uxbridge UB8 3NB

Hull and East Yorkshire

Tel: 01482 675376

Kent and Medway

George Villa, Hermitage Lane, Maidstone ME16 9PH, and satellite clinics in the west of Kent.

Tel: 01622 723816

[Clinical lead: Dr Mario Vergara-Williamson, consultant clinical psychologist and pain management specialist. Other professionals include: Consultant physician, CBT Therapist, Occupational Therapist. The service is overseen by Professor Leslie Findley, consultant neurologist at the Essex Neurosciences Centre in Romford].

Lancashire and South CumbriaThe Lancashire and South Cumbria Chronic Fatigue Service runs ME/CFS clinics at (1) Clitheroe Community Hospital (covering Blackburn with Darwen; Burnley, Pendle and Rossendale;Hyndburn and Ribble Valley) (2) Preston (Chorley and South Ribble; Preston) (3) Kendal (for Morecambe Bay) and (4) Freckleton (Blackpool; Fylde; Wyre). [The multi-disciplinary team includes Dr David Grimes, a consultant physician at Blackburn Royal Infirmary (who sees the more complex cases), a physiotherapist (Maureen Howe) who is also the team manager, a clinical psychologist, two additional physiotherapists, and an assistant psychologist.]

GP referrals and other inquiries to Maureen Howe, tel: 01772 777 022.

Lancashire (Ashton, Wigan and Leigh

ME/CFS service, ST/OT Unit. Leigh Infirmary, The Avenue, Leigh, WN7 1HS. Tel: 01942 264 321. Fax: 01942 264 323, Email

(Team members: Dr Tarek Gaber, consultant in rehabilitation medicine; Wilma Hudson, occupational therapist/team lead; Wendy Bracegirdle, physiotherapist; Mary Derbyshire, therapy assistant; Donna Millard, team administrator).

Leeds and West YorkshireChronic Fatigue Unit, Outpatients Suite, Newsam Centre, Seacroft Hospital, York Road, Leeds LS14 6WB

Tel: 0113 205 6513 or 0113 305 6521.  (Clinical lead: Sue Pemberton, consultant occupational therapist).

Leicestershire TeamTel: 0116 225 6193 (Clinical lead: Dr Trevor Friedman, consultant liaison psychiatrist, CFS Service – Liaison Psychiatry, Brandon Unit, Leicester General Hospital, Gwendolen Road, Leicester LE5 4PW).

LincolnshireTel: 01476 464046

(Clinical lead: Lynsey Woodman, occupational therapist, Grantham Hospital (14a) 101 Manthorpe Road, Grantham, Lincs NG31 8DG).

Manchester East

The Administrator, CFS/ME Service, 9th Floor, Regent House, Heaton Lane, Stockport SK4 1BS

Tel: 0161 426 5481

Email: catherine.burgess@stockportpct.nhs.uk

[The service only accepts referrals from GPs / Consultants and at present we cover Stockport, Oldham, South & Central Manchester] 



Norfolk and Suffolk

GP referrals to ME/CFS Service, Occupational Therapy Department, Lowestoft Hospital, Tennyson Road, Lowestoft, Suffolk NR32 1PT, tel: 01502 527579, fax: 01502 527554. Senior Occupational Therapist: Jo O’Leary. Clinics are held at the St James Health and Resource Centre, Queens Road, Great Yarmouth NR30 3DG, tel: 01493 335 790.

Nottinghamshire

Nottingham CFS/ME Service, Mobility Centre, Hucknall Road, Nottingham NG5 1PJ                                                     Tel: 0115 969 1169 (ext 59878) or 0115 993 6628

(Service lead: Sue Brennan, occupational therapist.)

Nuneaton, Warwickshire

George Eliot Hospital, College Road, Nuneaton, Warwickshire, CV10 7DJ.

Tel: 024 7686 5212

[ME/CFS service clinic days, Friday afternoons. Waiting time for initial appointment, 13 weeks. Lead clinician, Dr Vinod Patel, with multi-disciplinary team comprising occupational therapist, physiotherapist, nurse and psychologist. Dr Patel is a consultant physician in diabetes and endocrinology and Reader in Clinical Skills at Warwick Medical School.

Oxfordshire

OCCMET (Oxfordshire Community CFS/ME Tream)

Orchard Health Centre, Cope Road, Banbury OX1 2EZ

Tel: 01295 819191 Fax:01295 819111

[Team members: Hilly Quigley and Rachael Rogers, Specialist Occupational Therapists; Glenwys Wormald, Specialist Physiotherapist; Dr. Jean Bailey, GP with special interest in CFS/ME; Hélène Bush, administrator. Referrals should be made through GPs].

Peterborough and Cambridgeshire

Tel: 01733 774583

Nurse specialist: Barbara Boyden

Botolph Bridge Community Health Centre, Sugar Way, Woodston, Peterborough PE2 9QB



Salford

Hope Hospital, Stott Lane, Salford M6 8HD

Phone number not available

The Salford Chronic Fatigue Service service has been offering assessment and management to patients at Hope Hospital and Salford residents for 15 years.

[Team members: Dr Mansel Heaney, consultant immunologist; Dr Ellen Young, clinical psychologist]. 

Sheffield (South Yorkshire and North Derbyshire)

Fairlawns, Middlewood Primary Health Care Centre, 621 Middlewood Road, Sheffield S6 1TT.

Tel: 0114 229 2937 Fax: 0114 229 2922

[The adult team has a part-time physiotherapist (Mark Adams), with input from occupational therapy, clinical psychology and a GP with a special interest in ME/CFS. Adult referrals are accepted from GPs within South Yorkshire and North Derbyshire. GPs are required to make the diagnosis of CFS/ME prior to referral and to have completed a number of investigations.]

Shropshire

Mytton Oak 15, Royal Shrewsbury Hospital (North), Copthorne, Shrewsbury SY3 8XQ

Tel: 01743 261419 Fax: 01743 261155

Deercote, Telford TF3 2BH

Tel: 01952 204346 Fax: 01952 204348

[Team members: Simon Toghill, occupational therapist (service lead), Dr Bob Wilson, GP with a special interest, with access through the Shropshire Enablement Team to a clinical psychologist, two phsyiotherapists, five rehabilitation assistants, two speech and language therapists, an additional occupational therapist, a specialist living officer and four administrative staff.

Somerset

Tel: 01749 836688

South Birmingham

Tel: 0121 301 2290  (new phone number for the service).

South West London and Surrey (Sutton)

Tel: 0208 296 4152 (Clinical lead: Dr Amolak Bansal)

Sheffield (South Yorkshire and North Derbyshire)

Fairlawns, Middlewood Primary Health Care Centre, 621 Middlewood Road, Sheffield S6 1TT.

Tel: 0114 229 2937 Fax: 0114 229 2922

Southern Derbyshire

Tel: 01332 786657

Staffordshire

Tel: 01543 576609  Fax: 01543 576608 (Correspondence to M. Wong)

The ME/CFS service is provided within the Department of Psychology (Physical Health Psychology and Rehabilitation), Cannock Chase Hospital, Brunswick Road, Cannock WS11 5XY

Sussex-wide

Referrals should be made to: Sussex ME/CFS Service, Sydney West Primary Care Centre, Leylands Road, Burgess Hill, West Sussex RH15 8HS. This is also where people referred to the service by their GP are medically assessed. 

Tel: 01444 238 870/

(Service Manager: Caroline Soar).

The clinical lead doctor also runs clinics in Brighton. The service also offers group and individual treatments at out-patient clinics in Eastbourne. Referrals are accepted from GPs following completion of the service referral form including comprehensive blood-screening tests. The majority of patients take part in the multi-disciplinary out-patient group self-management programme. The course covers topics such as rest and activity management, sleep management, graded exercise (activity) and lifestyle management within a cognitive behavioural framework. The group is reviewed after three months.

Swindon and Wiltshire Adult Chronic Fatigue Services

Referrals should be made to the chronic fatigue service at the Great Western Hospital, Marlborough Road, Swindon, Wiltshire SN3 6BB. The service is provided by a clinical psychologist, a physiotherapist, an occupational therapy and a dietitian, and hopes soon (mid-June 2010) to have in post a GP with a special interest.

Teesside (South)

James Cook University Hospital, Middlesborough (Department of Infectious Diseases and Travel Medicine). Clinical lead: Dr Brendan McCarron (consultant physician in Infectious Diseases, Specialist Nurse ME/CFS: Amanda McGough. Tel: 01642 835 898

Tyne (North)

Tel: 0191 22723 6666 (ext 23284)

Wigan and Leigh

See Lancashire (Wigan and Leigh) 

Wiltshire South

Tel: 01225 465941 (ext 202)

Castle Street Surgery, Salisbury SP1 3SP

[Clinical leads: Katy McCarthy, specialist occupational therapist, and Dr Graham Jaggard, GP with a special interest].

Woking, Guildford and North Surrey

Tel: 01483 715911 (ext 6357)

Worcestershire

See entry for Herefordshire and Worcestershire.


CHILDREN AND YOUNG PEOPLE’S TEAMS

BathBath Paediatric ME/CFS Service, Royal National Hospital for Rheumatic

Diseases, Upper Borough Walls, Bath BA1 1RL

Tel: 01225 465 941 ext 203

Team administrator; Heather Hill

The Bath paediatric ME/CFS service provides local, regional and national assessment and treatment for over 150 children and young people each year. It is now open to the ‘choose and book’ appointment system run by the NHS. This means that children or adolescents anywhere in the country should have access to their out-patient service for advice on either diagnosis or management through a GP referral.

Cambridgeshire and PeterboroughThe Children’s Community Nursing Teams Nightingale Court, Ida Darwin Fulbourn Cambridge CB1 5EE Tel: 01223 884335 Fax: 01223 884299

This a small community team based at the Ida Darwin, Fulbourn, who provide a specialist service to children and young people up to the age of 19 years with CSF/ME, who are registered with a GP and attend school in Cambridgeshire and Peterborough.The team consists of: a paediatric consultant who acts as a link consultant to paediatricians throughout the area; children’s community nurse who provides a specialist to role in developing services for children and young people with CFS/ME throughout the area, in order to promote good practice for their care; paediatric cccupational therapist who provides a specialist role to develop good practice within the local OT team and acts as a link role with OT’s throughout the area. The remit of the team is to: to improve awareness of CFS/ME and the management of the condition offered by those working with children and young people with CFS/ME in education, social services and secondary and primary care; to support local implementation of the RCPCH guidance on CFS/ME; gather information on the needs of the above children and young people and their families in order to identify gaps in local provision and support future service development; provide specialist clinics to enable children to access the service. The service provides advice and support to local services (i.e. local paediatricians, children’s nurses, local occupational therapists and GPs) who remain the key service providers. Referrals for the CFS/ME service are accepted via telephone or letter from consultant paediatricians. Referrals for the Children’s Community Nursing Teams & Special Needs School Nursing Team are accepted via telephone, faxed referral form or letter.

CornwallClinics are run in Truro, Bodmin, Camborne/Redruth, Helston, Poltair and Stratton.

Contact information: Sharon Penhaligon, Heligan Portacabin, Royal Cornwall Hospital, Truro, Cornwall TR1 3LJ, tel: 01872-252935 fax: 01872 256401, email

The service offers an outpatient and community-based service for patients

suspected of having CFS/ME, providing diagnosis, assessment, and a clinical management plan to enable long-term rehabilitation, sharing care with the GP and returning the patient to primary care following re-enablement. The team comprises a clinical immunologist, a GP with special interest, a consultant clinical psychologist, four occupational therapists and aclinical secretary/administrator.

Services for children: There is a separate service for children and young people affected, run within paediatrics, up to the age of 18. Transition is managed jointly.

Key personnel: Professor Anthony Pinching (consultant), Marc Kelly (matron), Dr Cristina Lopez-Chertudi (consultant clinical psychologist), Carol Wilson (head occupational therapist).

Cumbria (North)Children’s Community Team, Cockermouth Cottage Hospital, Isel Road, Cockermouth, Cumbria CA13 9HT

Tel: 01900 324 131 Mob: 07789 925 705

(Service lead: Laura Wilson, children and young people’s CFS/ME practitioner).

DevonTel: 01392 208614

Royal Devon and Exeter Hospital

Paediatrician: Dr James Hart, Occupational therapist: Helga Gore.

DorsetCFS/ME Service for Children and Young People, Children’s Centre, Damers Road, Dorchester, DT1 2LB. Tel: 01305 253148  Email

Assessment and treatment is available to all children living in Dorset with appointments offered locally.  Limited domiciliary visits are available if required for those unable to attend an out-patient appointment.

Referrals are accepted from GPs, school doctors and other paediatricians. Early referral is strongly recommended for children who are struggling to cope with daily activities and school attendance due to disabling fatigue.

Treatment including therapy and medical reviews, is offered by the multi-disciplinary therapy team which is made up of Team Leader/Occupational Therapist, Clinical Psychologist, Physiotherapist , Child Support Worker and Administrator.  Medical support is provided by Consultant Paediatricians.

The service offers an individual plan of fatigue management, psychological therapy and lifestyle management, according to need, to young people and their families. School liaison, information and training are a key part of the Team’s work.                                                                                                                                                      

HertfordshireJanuary 2009: The ME/CFS service for children and adolescents at Lister Hospital, Stevenage, has been reinstated. The original service was closed in 2006 and this resulted in widespread protests from parents and children – who then had to travel to London’s Great Ormond Street Hospital if they required access to a specialist ME/CFS service.The new service, which started in November 2008, is currently covering North and East Hertfordshire.  The situation is due to be reviewed in six months time. We don’t, at present, have contact details for this service.

Liverpool (Royal Liverpool Children’s Hospital)Tel: 0151 228 4811 (ext 3803)

Manchester Service for Children and Young PeopleHarrington Building

Royal Manchester Children’s Hospital

Oxford Road

Manchester

M13 9WL

Contact details for referrals and inquiries:

Jacqui Booth, tel: 0161 701 4516

Co-ordinating clinician, Alexandra Woore

This multi-disciplinary team offers advice, support and individual treatment programmes for children and young people diagnosed with ME/CFS. It coordinates the many services involved in caring for these young people and their families.

Referral information

Children and young people up to the age of 16, with unexplained chronic fatigue can be referred to the service by a Consultant Paediatrician or a Senior CAMHS professional. Referrals for the 16 and 17 year old age group should be discussed with the team to discuss the most appropriate service. The team currently welcomes referrals for direct intervention for children/young people from Bolton, Salford, Wigan and Manchester. The team also welcomes referrals for professional consultation only from clinicians within the other areas of the Greater Manchester footprint. As the service develops, it hopes to offer direct services throughout the whole of the Greater Manchester region, and professional consultation further afield within the North West.

North Hampshire and Surrey (Frimley)Tel: 01483 782882

North London(Great Ormond Street Hospital)

Tel: 0207 813 8541

NottinghamshireChildren’s Service, D Floor, East Block, Nottingham University Hospital, Queens Medical Centre, Nottingham NG7 2HU)

Tel: 0115 924 9924 (ext 66282)

(Clinical co-ordinator: Alison McDonald).

South Yorkshire and North Derbyshire“Fairlawns”, 621 Middlewood Road, Sheffield S6 1TT                                                                               Administrator: Julia Openshaw. Tel: 0114 229 2937.

SussexThere is a monthly ME/CS paediatric clinic at the Royal Alexandra Children’s Hospital, Eastern Rad, Brighton BN2 5BE

Tel: 01273 696955 (switchboard)

(Consultant paediatrician: Dr Kamal Patel).


NHS SPECIALIST SERVICES IN SCOTLAND

We want to build up a picture of specialist NHS services for adults and children with ME in Scotland. If you know of any good services, please let us know. If you have any tried any services, your feedback will be most welcome. Email here.

We’ll publish the detail as it comes in.


NHS SPECIALIST SERVICES IN WALES 

We are building up a picture of specialist NHS services for adults and children with ME in Wales. If you know of any good services, please let us know. If you have any tried any services, your feedback will be most welcome. Email here.

North Wales ME/CFS Service,Connor’s Quay Clinic, Wepre Drive, Connah’s Quay, Deeside, Flintshire CH5 4HA  Tel: 01244 813 486 Fax: 01244 830883 (This service takes referrals from the east of North Wales. Staff: Simon Neal, clinical psychologist; Penny Cowley, head of dietetics; Chris Watson, superintendent physiotherapist).

Statement from North East Wales NHS Trust (found in the link highlighted above), accessed 25 November 2009:

  • We provide a group-based programme for people with an existing diagnosis of Chronic Fatigue Syndrome.
  • We also provide individual Multidisciplinary assessment and treatment for people with Medically Unexplained Symptoms that include significant levels of fatigue.
  • We will offer an assessment to people at any stage of the disorder, but the earlier the better.
  • If your patient is failing to recover from any period of ill health and they are presenting with increasing fatigue we will We are also happy to offer a service to individuals who are house bound or who have significant fatigue related mobility problems.
  • Currently patients may be seen within 4 to 6 weeks of referral.

Caernarfon –

ME/CFS Service, Peblig Ward, Eryri Hospital, The Park, Caernarfon, Gwynedd LL55 2YE

Tel: 01286 662 734 (This service takes referrals from the west of North Wales)

Pain and Fatigue Management Centre

Bronllys Hospital

Brecon

Powys LD3 0LU

For referrals or more information, contact Margaret Davies, the office manager, tel:  01874 712 499.                   

The Pain and Fatigue Management Centre offers a three-week residential programme based on a biopsychosocial approach to help people who are self-caring to manage their condition. The programme is run by an interdisciplinary team consisting of nursing, physiotherapy, occupational therapy and psychology.  People cannot self-refer but may be referred by their GP or any qualified clinician involved in their care.


 NHS SPECIALIST SERVICES IN NORTHERN IRELAND

Northern Ireland’s only specialist NHS service for people with ME/CFS at Windsor House, Belfast City Hospital, closed in July 2009, when the clinical lead – who did the work on a voluntary basis – decided to retire. There are at present no plans to replace it – although the Northern Ireland ME Association is lobbying for the needs of the province’s 7,000 people with the illness to be met.